Welcome to the Alberta Chapter!
Thank you for visiting the Alberta, Canada Chapter!
FSHD Canada Foundation has partnered with the FSHD Society to support and grow the FSHD Communities across Canada with the shared goal to deliver treatments and a cure for FSH Muscular Dystrophy.
We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
The goals of the Chapter Program here in Alberta are to:
- Increase awareness and educate families throughout Alberta.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSHD.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
2024 Alberta Chapter - World FSHD Celebration
Hello Alberta Chapter Friends!!
WHAT: On World FSHD Day, June 20, we are hosting a get-together with our Alberta Chapter members to celebrate the successes we have seen over the last year, and to raise awareness for the cause. Come mingle with us - grab some food and your favourite beverage after work. You might even get a chance to take an orange slice selfie for the cause! Children are welcome until 7pm!
WHEN: June 20th, 2024 5:30pm - 7:30pm MT
WHERE: Wild Rose Brewery - 4580 Quesnay Wood Dr. SW, Calgary, AB
PLEASE RSVP HERE to let us know you're coming.
Learn more about WORLD FSHD DAY.
We hope to see you there!
Warmly,
Jennie Camarta | Karen Camarta
FSHD Society Alberta Chapter Directors
Calgary FSHD 360
The first-ever Canadian FSHD 360 Educational Conference was held in Calgary on March 16, 2024. You can view the presentation slides HERE>>.
Register for the 2024 Walk & Roll to Cure FSHD
Saturday, September 7, 2024 at 9:00am at the Riverwalk Plaza, Calgary AB
Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media and via email, and invite others to join you in getting us closer to a cure!
The Walk & Roll to Cure FSHD is the FSHD Society’s largest, annual fundraiser. It is also the ONLY signature event in North America dedicated to raising funds for FSHD research, cures, and community support.
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To contact us directly, please email: AlbertaChapter@fshdsociety.org
Please join us! Simply fill out the form in the sidebar to become a member of the Alberta chapter
Upcoming Events
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Karen Camarta
Chapter Co-Director
Welcome! Karen Camarta here, excited to join my sister Jennie in forming the Alberta Chapter of FSHD Society.
With FSHD in my paternal family, it was easy to see the signs in my twenties that I too had joined the ranks, though I have been fortunate to-date with minor symptoms.
I have a beautiful daughter and amazing husband. While I am happy to call Calgary my home, my love of travel gets me out of my house as much as possible, out to discover nature and culture throughout the world.
Looking forward to this next adventure and to meet you!
Jennie Camarta
Chapter Co-Director
Hello! I'm so happy you're here! I'm Jennie Camarta and, along with my sister Karen, we run the Alberta Chapter of the FSHD Society.
While I've pretty much always known I've had FSHD, I was officially diagnosed in my early twenties. However, despite my condition, I'm fortunate to lead a very active lifestyle. My passions in life are getting lost in the gorgeous Rocky Mountains for days at a time, travelling to unique spots all over the world, and, most of all, spending time with my insanely wonderful nieces and nephews.
I've been married to my incredibly supportive partner Nick for close to 17 years. We live in Calgary, and have two pretty cute senior kitties. When I'm not hiking or planning my next trip somewhere, I'm working as a Registered Nurse with the veteran population.
Don't hesitate to reach out, and I look forward to getting to know you!
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
