Arizona Chapter
Thank you for visiting the Arizona Chapter of the FSHD Society which officially launched in August 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Celebrating World FSHD Day!
Every June 20th, people around the world join in activities to raise awareness for Facioscapulohumeral muscular dystrophy (FSHD) through World FSHD Day. Here in AZ, we're doing our part to celebrate with an official state proclamation and by lighting up the Gilbert Water Tower.
How will you celebrate?
Get some great ideas HERE
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The Arizona Walk & Roll to Cure FSHD
Our 2020 Walk & Roll has gone VIRTUAL! Please join us, and invite your family and friends from wherever they are to join us too!
We will "see" you on Saturday, September 12, 2020 - when all of our Chapters nationwide will join together!
Click the button below to register or donate!
All of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same. This is why we must continue to move forward!
To contact us directly, please email: ArizonaChapter@fshdsociety.org.
Don’t forget to follow us on FACEBOOK!
Please join us! Simply fill out the form in the sidebar to become a member of the Arizona chapter.
Upcoming Events
Aug
5
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »
Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »Sep
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »
LANDON & MARIE MORRELL
Chapter Directors
Landon and several family members have FSHD to varying degrees. After watching this disease progress for decades, it’s exciting to see the recent advancements in research. The FSHD Society plays a significant role in that progress. We’re excited to participate in the Chapter program to increase awareness and education of our Arizona families and communities. We look forward to helping build connections among patients, care givers, health care providers, and others affected by the disease.
Landon owns a business that designs custom homes and Marie is a Vice President and in-house attorney with a local manufacturing company.
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!
