Arizona Chapter
Thank you for visiting the Arizona Chapter of the FSHD Society which officially launched in August 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email: ArizonaChapter@fshdsociety.org.
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Please join us! Simply fill out the form in the sidebar to become a member of the Arizona chapter.
Upcoming Events
Dec
18
FSHD Radio – Meet Meredith Huml
Meredith Huml Join radio host Tim Hollenback via Facebook Live on Wednesday, December 18, at 9:00 PM ET | 8:00 PM Central. His guest this month is Meredith Huml, director of the North Carolina chapter. Diagnosed at age 12 with a "disease she had never heard of," Meredith faced the wrenching loss of her beloved dancing. Her younger brother Jonathan as diagnosed with FSHD as well, with symptoms that progressed even faster than hers. After years of struggling, she has not…
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LANDON & MARIE MORRELL
Chapter Directors
Landon and several family members have FSHD to varying degrees. After watching this disease progress for decades, it’s exciting to see the recent advancements in research. The FSHD Society plays a significant role in that progress. We’re excited to participate in the Chapter program to increase awareness and education of our Arizona families and communities. We look forward to helping build connections among patients, care givers, health care providers, and others affected by the disease.
Landon owns a business that designs custom homes and Marie is a Vice President and in-house attorney with a local manufacturing company.
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