Arizona Chapter
Thank you for visiting the Arizona Chapter of the FSHD Society which officially launched in August 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Arizona Walk & Roll to Cure FSHD a Success!
Our 2020 Virtual Walk & Roll was fantastic, thanks to all of you! Our chapter overcame all the obstacles 2020 threw at us. You invited your family and friends and they showed up!
On Saturday, September 12, 2020 we joined with Chapters nationwide to celebrate in a 4-hour Facebook livestream event. It was awesome.
Together we are celebrating more than a half million raised nationwide!
To contact us directly, please email: ArizonaChapter@fshdsociety.org.
Don’t forget to follow our chapter on our local, chapter FACEBOOK page!
Please join us! Simply fill out the form in the sidebar to become a member of the Arizona chapter.
Upcoming Events
Dec
2
FSHD Society Radio with civil rights lawyer Ed Barocas
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. Our guest tonight is Eddie Barocas, an extraordinary champion for underdogs, who until recently served as Legal Director of the American Civil Liberties Union of New Jersey. You can read more about him on our blog. He will talk about his amazing life and how FSHD…
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Webinar: COVID-19 Update
3:00 pm ET | 2:00 pm CT | 1:00 pm MT | 12:00 pm PT. Last spring, shortly after states began locking down, Drs. Ghinwa Dumyati and Rabi Tawil from the University of Rochester presented a webinar on the COVID-19 pandemic. In the eight months since, researchers around the world have worked at a breakneck pace to understand how the virus spreads, how it affects patients, how to treat it, and ultimately how to prevent it through a vaccine. With…
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LANDON & MARIE MORRELL
Chapter Directors
Landon and several family members have FSHD to varying degrees. After watching this disease progress for decades, it’s exciting to see the recent advancements in research. The FSHD Society plays a significant role in that progress. We’re excited to participate in the Chapter program to increase awareness and education of our Arizona families and communities. We look forward to helping build connections among patients, care givers, health care providers, and others affected by the disease.
Landon owns a business that designs custom homes and Marie is a Vice President and in-house attorney with a local manufacturing company.
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!
