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Arizona Chapter

Home / Connect / Local Chapters / Arizona Chapter
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Arizona Chapter

Thank you for visiting the Arizona Chapter of the FSHD Society.

We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the local community and help improve the quality of life of all those affected.

2022 Walk & Roll Graphic for Chapter Pages

Thank you for supporting the Walk & Roll in 2022!

A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Saturday, September 17th in Gene C. Reid Park in Tucson, AZ! We are thrilled to announce that we raised over $9,000!!! There is still time to contribute, and you can do so here: https://team.fshdsociety.org/arizonawalkroll

Want to know more about the Walk & Roll? Learn More

To contact us directly, please email: ArizonaChapter@fshdsociety.org.

Don’t forget to follow our chapter on our local, chapter FACEBOOK page

Become a member of the Arizona chapter and never miss any local news or activity. Button on the right!

Upcoming Events

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Today

March 2023

Tue 28
Featured Featured Mar 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

April 2023

Mon 10
Wellness Hour
Featured Featured Apr 10 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 11
Featured Featured Apr 11 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, April 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

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Ally Roets & her son, Sam

ALLY ROETS & SAM RAY

Chapter Directors

Ally, her son Sam, and husband Tim live in Vail, AZ with their two cats, Robinson and Joel, and dog, Cami.  Sam attends Vail Academy and High School where he is a member of the robotics club and studies Music Production through the Career Technical Education (CTE) program.   Ally is retired from the United States Air Force and a substitute teacher.

Sam was diagnosed with FSHD when he was six years old, a first in their family.  Since the diagnosis, they have learned as much as possible about the disease and have been avid supporters of their local MDA.  They are excited to become more involved in the FSH community, help connect FSH-affected Arizonians, forward research, and improve the quality of life for those impacted through education, action, and empowerment.  They believe the FSHD Society will help to unlock a treatment and cure.  Until then, they are committed to increasing awareness, supporting each other within the FSH community, and exploring opportunities to help FSH-affected individuals lead full and prosperous lives.

Get Involved, Stay Informed!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy.

When you sign up you'll receive the latest word on local chapter events, clinical trials and other research studies, information on how to a better life, and about local events that will connect to our remarkable community.  If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

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General Mailing Address:

75 North Main Street, Suite 1073
Randolph, MA 02368 U.S.A.

Mail Donations to:

Department 960
PO Box 4106
Woburn, MA 01888-4106

(781) 301-6060

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