Welcome to the Atlanta Chapter!
Thank you for visiting the Atlanta Chapter of the FSHD Society which officially launched in October 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
The goals of the Chapter Program here in the Greater Atlanta area are to:
- Increase awareness and educate families throughout Georgia.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Mark your calendars for Sunday, Oct. 15th, 2023 at the Chattahoochee Nature Center! We are so excited to be returning to this beautiful venue to celebrate our progress, connect across our community, and raise awareness about FSHD. You can get started today by registering to fundraise. We can't wait to see you there!
Volunteer Spotlight: Jack Gerblick
Hear from your local Chapter Director (and National Board Member!), Jack Gerblick, about his & his family's journey with FSHD, and what his involvement has meant to him.