Welcome to the Atlanta Chapter!
Thank you for visiting the Atlanta Chapter of the FSHD Society which officially launched in October 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
The goals of the Chapter Program here in the Greater Atlanta area are to:
- Increase awareness and educate families throughout Georgia.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Our first Walk & Roll to Cure FSHD took place on Sunday, September 29th, 2019 in Roswell, GA.
THANK YOU to all who made it a huge success! See you next year!
To contact us directly, please email: AtlantaChapter@fshdsociety.org
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Please join us! Simply fill out the form in the sidebar to become a member of the Atlanta chapter
Upcoming Events › Atlanta Chapter Events
This year, Acceleron’s ACE-083 drug is expected to complete its phase 2b trial, and Fulcrum is conducting its trial of Dr. Rabi Tawil the first drug intended to repress DUX4, the gene implicated in causing FSHD. This is a good time to brush up on the vocabulary of clinical trials and the FDA approval process, and learn how to navigate the path to volunteering for trials. Your guide is Rabi Tawil, MD, who is principal investigator for several clinical trials…Find out more »