Welcome to the Atlanta Chapter!
Thank you for visiting the Atlanta Chapter of the FSHD Society which officially launched in October 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
The goals of the Chapter Program here in the Greater Atlanta area are to:
- Increase awareness and educate families throughout Georgia.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Thank you for supporting the Walk & Roll in 2022!
A huge THANK YOU to everyone who walked, rolled, donated, and volunteered on Sunday, Oct. 16th at the Chattahoochee Nature Center! We are very pleased to announce that we have raised over $38,000! We wouldn't be here now without YOUR support.
We thank you for your support! We look forward to seeing you again next year: Save the Date for Sunday, Oct. 15th, 2023 at the Chattahoochee Nature Center!
Want to know more about the Walk & Roll? Learn More
Volunteer Spotlight: Jack Gerblick
Hear from your local Chapter Director (and National Board Member!), Jack Gerblick, about his & his family's journey with FSHD, and what his involvement has meant to him.
To contact us directly, please email: AtlantaChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the Atlanta chapter
CarePartner HourZoom Virtual Meeting
8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Wellness HourZoom Virtual Meeting
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »
FSHD Radio: Community ProfilesFacebook and YouTube
Tuesday, April 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »