
Welcome to the British Columbia Chapter!
hank you for visiting the British Columbia, Canada Chapter of the FSHD Canada Foundation!
FSHD Canada Foundation has partnered with the FSHD Society to support and grow the FSHD Communities across Canada with the shared goal to deliver treatments and a cure for FSH Muscular Dystrophy.
We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
The goals of the Chapter Program here in British Columbia are to:
- Increase awareness and educate families throughout Alberta.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSHD.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!

Stay tuned for our First Annual British Columbia Walk & Roll to Cure FSHD!
Want to know more about the Walk & Roll? Learn More
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To contact us directly, please email: BCChapter@fshdsociety.org
Please join us! Simply fill out the form in the sidebar to become a member of the British Columbia chapter
Upcoming Events
Wellness Hour – All about wheelchairs
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is all about wheelchairs. How do you know when you need... Read More »
FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, April 11th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
Young Professionals
Zoom Virtual Meeting7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »