Welcome to the Central Texas Chapter!
Thank you for visiting the Central Texas Chapter of the FSHD Society which officially launched in March 2020. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
The goals of the Chapter Program here in the Central Texas area are to:
- Increase awareness and educate families throughout Central Texas.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Our Tacos & Tunes Celebration on November 5, 2022 was a huge success!
On Saturday, November 5th, over 100 people met at The Frontyard Brewery and 5 Soul Wine Co to celebrate Tacos & Tunes! Josh Bergmann, fellow FSHer and musician entertained the crowd as they enjoyed breakfast tacos and morning libations! Tacos & Tunes raised over $71,000 toward finding a cure for FSHD. A great time was had by all!
Read our CenTex Summer Hot Sheet with great information about World FSHD Day, the Walk & Roll and more!
Volunteer Spotlight: Ashley Bryan
Meet your local fundraising leader, Ashley Bryan! She shares her journey with FSHD, how her connection to the FSHD Society has helped her, and why she's hopeful for the future.