Welcome to the Central Texas Chapter!
Thank you for visiting the Central Texas Chapter of the FSHD Society which officially launched in March 2020. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
The goals of the Chapter Program here in the Central Texas area are to:
- Increase awareness and educate families throughout Central Texas.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Read our CenTex Summer Hot Sheet with great information about World FSHD Day, the Walk & Roll and more!
Volunteer Spotlight: Ashley Bryan
Meet your local fundraising leader, Ashley Bryan! She shares her journey with FSHD, how her connection to the FSHD Society has helped her, and why she's hopeful for the future.
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Central Texas Walk & Roll to Cure FSHD - Fall 2021
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To contact us directly, please email: CenTexChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the Central Texas Chapter
Upcoming Events
2021 Central Texas Walk & Roll to Cure FSHD!
Founders Park Pavillion 419 Founders Park Road, Dripping SpringsPlease mark your calendars for the 2021 Central Texas Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Ashley Bryan,... Read More »
FSHD University: The Mattering Effect: How Feeling Valued and Adding Value Shape our Lives
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT Presented by Isaac and Ora Prilleltensky. Mattering consists of feeling valued and adding value, to... Read More »
Early-onset Chapter Meeting with Dr. Natalie Katz
Zoom Virtual MeetingThe Early-onset FSHD Chapter is hosting a meeting for all families impacted by early-onset or infantile FSHD. September 27th 2:00 MST/PT, 3:00 MT, 4:00 CT, 5:00 ET Our special guest... Read More »
Rachel Sartin
Chapter Director
Rachel lives in Austin Texas with her husband Rob. They have two sons, one in high school and one in college. After studying computer science in college and graduate school, Rachel worked in a variety of software companies. She did many things, but mostly concentrated around the development of software, both as a developer as well as manager and executive. She recently retired and is concentrating on family and other volunteer efforts. So she is excited to be able to work with the FSHD Society as a new chapter director. She hopes the chapter can offer support and information to those affected as well as their friends and family. Rachel was diagnosed with FSHD shortly after high school.
Also please meet the Central Texas Fundraising Leader, Ashley Bryan. Contact her to brainstorm ideas and to volunteer for fundraising efforts! She can be reached at ashleybryan1@gmail.com
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!
