Welcome to the Central Texas Chapter!

Thank you for visiting the Central Texas Chapter of the FSHD Society which officially launched in March 2020. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

The goals of the Chapter Program here in the Central Texas area are to:

Increase awareness and educate families throughout Central Texas.
Help build connections among patients, care givers, health care providers and others affected by this disease.
Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
Last but not least let’s HAVE SOME FUN while we accomplish these goals!

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To contact us directly, please email: CenTexChapter@fshdsociety.org

Don’t forget to follow us on FACEBOOK

Please join us! Simply fill out the form in the sidebar to become a member of the Central Texas Chapter

Upcoming Events

Upcoming Events › Central Texas Chapter Events

Apr
8

FSHD Radio Sequester Camp

Apr 8 @ 8:00 pm - 9:00 pm

|Recurring Event (See all)

Facebook Live United States

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…

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