Welcome to the Chicagoland Chapter!
Thank you for visiting the Chicagoland Chapter! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Volunteer Spotlight: Dave Lukas
Hear from your Chapter Director, Dave Lukas, about his journey with FSHD, how he got involved with the FSHD Society, and why he's hopeful for the future.
2021 Virtual Chicagoland Walk & Roll a Tremendous Success!
On Saturday, September 11, walkers and rollers stepped out to say "FSHD Ends with Me!" at the annual Chicagoland Walk & Roll. Our local event raised over $20,000 towards the campaign total, through participants and teams from across the state.
Stay tuned as we begin the planning for our 2022 Chicago Walk & Roll to Cure FSHD!
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To reach us, please email: ChicagoChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK!
Would you like to get involved? Simply fill out the form in the sidebar.
Upcoming Events
Sharegiver Hour – Mindfulness meditation
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Jennifer Egert, PhD Join psychologist and mindfulness instructor Jennifer Egert, PhD, to learn about mindfulness meditation... Read More »
FSHD Univeristy – Physical therapy for shoulder dyskinesia
1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Presented by Jos IJspeert, MSc, Radboud University Medical Center Jos IJspeert, Radboud University Medical Center Shoulder... Read More »
FSHD Radio: Hot off the Press with Jamshid Arjomand, PhD
Facebook and YouTubeThursday, January 27th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 4th Thursday of every month, join us for FSHD Radio:... Read More »
DAVE LUKAS
Chapter Director
Dave feels passionately about building a strong chapter in the Chicagoland area because he believes in the power of shared connection through this disease. Whether as someone who’s affected or someone who loves someone who’s affected, building a community around each other allows us all to gain strength, support and encouragement so we can push towards a cure for this disease and be an advocate for us all. Dave lives in the northwest suburbs of Chicago with his wife, 3 kids and Siberian Husky pup.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
