Welcome to the Chicagoland Chapter!
Thank you for visiting the Chicagoland Chapter of the FSHD Society which officially launched in October 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
_________
Join Us for Our Chicagoland FSHD Family Day Conference
On Sunday, October 20th at the Shirley Ryan AbilityLab in Chicago, we will be having our first-ever FSHD Family Day Conference to grace the shores of Lake Michigan. Join family, friends, and fellow travelers living with FSH muscular dystrophy for a wonderful half day of learning and connecting. You’ll meet the region’s leading doctors and specialists, such as Drs. Charulatha Nagar and Susan Keeshin, to learn about best practices in managing symptoms, genetic testing, family planning, etc. You’ll be able to ask top experts about the latest clinical trials and advances in developing treatments. You’ll meet amazing leaders in our community. For more information or to purchase your tickets, visit the event page.
_________
The Walk & Roll
On Saturday, Sept. 14th in Citizens Park, Barrington, IL we came together to raise awareness, build our community, and raise money toward a cure!
It was a tremendous success! You can visit our event page HERE!
_________
To reach us, please email: ChicagoChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK!
Would you like to get involved? Simply fill out the form in the sidebar.
Upcoming Events
Feb
2
Chicagoland 2020 Walk & Roll Committee Meeting
If you're interested in helping plan our 2020 Walk & Roll to Cure FSHD, RSVP on the link below. Mt. Prospect Library, 10 South Emerson Street, Mt. Prospect, IL 60056 12:00pm-3:00pm, Meeting Room B This is our first walk committee meeting, so please come and find out about how you can help, time commitments and what's expected of the committee. We hope to see you there! ~Dave Lukas, Chicagoland Chapter Director ChicagoChapter@fshdsociety.org
Find out more »Mar
4
FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »Apr
1
FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »
DAVE LUKAS
Chapter Director
Dave feels passionately about building a strong chapter in the Chicagoland area because he believes in the power of shared connection through this disease. Whether as someone who’s affected or someone who loves someone who’s affected, building a community around each other allows us all to gain strength, support and encouragement so we can push towards a cure for this disease and be an advocate for us all. Dave lives in the northwest suburbs of Chicago with his wife, 3 kids and Siberian Husky pup.
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!