Welcome to the Colorado Chapter!
Thank you for visiting the Colorado Chapter of the FSHD Society!
We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email: ColoradoChapter@fshsociety.org.
Don’t forget to follow us on FACEBOOK!
Save-the-Date for our 2023 Colorado Walk & Roll!
Mark your calendar for September 10th, 2023 - for our 8TH ANNUAL Colorado Walk & Roll to Cure FSHD in Castle Rock, CO. More details to come.
Want to know more about the Walk & Roll? Learn More
Upcoming Events
FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, March 23rd On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »
Feeling Fit with FSHD: Hands and arms part 2
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »
FSHD University: Novel treatment strategies for FSHD
Zoom web conference1:30 PM ET | 12:30 PM CT | 11:30 AM MT | 10:30 AM PT Nizar Saad, PhD Nizar Saad, PhD is an assistant professor at the Center for Gene... Read More »
Kurt Spiegel
Chapter Director
I was officially diagnosed with FSHD at 53 as my muscle atrophy and unexplained weakness sent me searching for a cause. Coming from an endurance athlete lifestyle, the progression of the disease significantly impacted all aspects of my physical activities.
No longer able to work, I’m looking to work closely with the FSHD Society to provide education, insights, and advice to FSHD patients and caregivers so that we can live the best life possible.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
