Welcome to the Colorado Chapter!

Thank you for visiting the Colorado Chapter of the FSHD Society!

We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To contact us directly, please email: ColoradoChapter@fshsociety.org.

Don’t forget to follow us on FACEBOOK!

Thank you for supporting the 2022 Colorado Walk & Roll!

A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Sunday, Sept. 11th in Castle Rock, CO! We are thrilled to announce that we achieved our goal, and have raised more than $55,000!!! There is still time to contribute, and you can do so here: https://team.fshdsociety.org/cowalkroll

Mark your calendar for September of 2023 - for our 8TH ANNUAL Colorado Walk & Roll to Cure FSHD!

Want to know more about the Walk & Roll? Learn More

Upcoming Events

Today

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Women on Wellness: On Mattering

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we'll be talking about "mattering," feeling valued as a... Read More »

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Wellness Hour: Holiday revels

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, you're invited to come dressed in Zoom-worthy holiday apparel, with favorite seasonal libations... Read More »

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Looking for an FSHD Chapter Director in Sacramento

Can You Envision Your Name Here?

Chapter Director

We are looking for leadership for this important chapter! We welcome all interested parties to contact us and inquire about getting involved as a member of the chapter committee or to be considered for the important role of Chapter Director.

Contact Beth Johnston at Beth.Johnston@FSHDSociety.org

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

Sign Up Today!