Welcome to the Colorado Chapter!
Thank you for visiting the Colorado Chapter of the FSHD Society which officially launched in October 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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The Walk & Roll
Please join us for our 5th Annual Walk & Roll on Saturday, September 12th!
To contact us directly, please email: ColoradoChapter@fshsociety.org.
Don’t forget to follow us on FACEBOOK!
Upcoming Events
Apr
1
FSHD Society Radio with guest Carden Wyckoff
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Call-in number: (262) 422-6369 Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's…
Find out more »FSHD Radio Sequester Camp
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…
Find out more »FSHD Radio Sequester Camp
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…
Find out more »
AMANDA A. HILL
Chapter Director
I grew up here in Colorado and live in Highlands Ranch with my husband, Justin, and our two adorable yellow labs. Justin was diagnosed with FSHD in 2016 at the age of 31 and the disease has since impacted our lives greatly. I work in biomedical research and I am passionate about health and scientific education and advocacy, so becoming involved with the FSHD Society was a natural and obvious step for me. Beyond the FSHD, Justin and I love nights out in Denver; gardening and enjoying our backyard with the dogs; all things having to do with food, cooking, wine, and beer; and researching cleaner, safer, more sustainable lifestyle changes. I am honored to be the FSHD Society Chapter Director in Colorado and am excited for our community to be able to grow together.
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