Welcome to the Colorado Chapter!
Thank you for visiting the Colorado Chapter of the FSHD Society!
We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email: ColoradoChapter@fshsociety.org.
Don’t forget to follow us on FACEBOOK!
The 2023 Colorado Walk & Roll to Cure FSHD
Mark your calendar for September 10th, 2023 - for our 8TH ANNUAL Colorado Walk & Roll to Cure FSHD in Castle Rock, CO. REGISTRATION IS OPEN!
Learn more about the 2023 Walk & Roll to Cure FSHD HERE!
Upcoming Events
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
FSHD Radio: Hot off the Press – Mel Hayes of Fulcrum Therapeutics on the REACH Trial
Facebook and YouTubeThursday, September 28th 14:00 PM CET | 13:00 PM UK | 8:00 AM ET | 7:00 AM CT | 6:00 AM MT | 5:00 AM PT Earlier this month, Fulcrum... Read More »
Feeling Fit with FSHD – Why exercise?
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join us for our second session of... Read More »
Kurt Spiegel
Chapter Director
I was officially diagnosed with FSHD at 53 as my muscle atrophy and unexplained weakness sent me searching for a cause. Coming from an endurance athlete lifestyle, the progression of the disease significantly impacted all aspects of my physical activities.
No longer able to work, I’m looking to work closely with the FSHD Society to provide education, insights, and advice to FSHD patients and caregivers so that we can live the best life possible.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
