Welcome to the Columbus Chapter!
Thank you for visiting the Columbus Chapter of the FSHD Society which officially launched in July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
You may contact the Columbus Chapter Director, Sue Aumiller: ColumbusChapter@FSHDSociety.org
Check out some great photos from our Chapter meeting on Nov. 11th, 2018:
Upcoming Events
Dec
18
FSHD Radio – Meet Meredith Huml
Meredith Huml Join radio host Tim Hollenback via Facebook Live on Wednesday, December 18, at 9:00 PM ET | 8:00 PM Central. His guest this month is Meredith Huml, director of the North Carolina chapter. Diagnosed at age 12 with a "disease she had never heard of," Meredith faced the wrenching loss of her beloved dancing. Her younger brother Jonathan as diagnosed with FSHD as well, with symptoms that progressed even faster than hers. After years of struggling, she has not…
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12
Columbus Chapter Meeting
You won’t want to miss our next Chapter meeting as there is so much to share! It’s an exciting time in the world of FSHD. Join us on Sunday, January 12th from 1-3 pm at the Columbus Metropolitan Library-Dublin Branch. Please note: We will be in Meeting Room 2! Our special guest speaker will be Marco Tellez, CRC, CMA, who is the Coordinator for the ReSolve Study at OSU and is excited to discuss it with us! They are currently…
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SUSAN AUMILLER
Chapter Director
I’m Susan Aumiller and look forward to forming the Columbus Chapter of the FSHD Society. Both my son and husband were diagnosed last year (2017) and we want to bring together those affected to support one another.
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