Welcome to the Columbus Chapter!
Thank you for visiting the Columbus Chapter of the FSHD Society, established July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Sharegiver Hour
To all who are caregivers to FSHD loved ones! Join us for our Sharegivers Hour on 4th Tuesday of every month from 8-9pm EST. You will find this to be a safe place to share and listen to each other about our day to day situations. We invite you to join us!
2021 Columbus Walk & Roll a Tremendous Success!
On Saturday, September 11, walkers and rollers stepped out to say "FSHD Ends with Me!" at the annual Columbus Walk & Roll. Our local event raised over $41,000 towards the campaign total, through participants and teams from across the state.
Stay tuned as we begin the planning for our 2022 Columbus Walk & Roll to Cure FSHD!
______________
To contact the Columbus Chapter Director, Sue Aumiller: ColumbusChapter@FSHDSociety.org
Please visit us on Facebook for updates
Our Chapter in Pictures!
Upcoming Events
Sharegiver Hour
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Women on Wellness
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »
Wellness Hour (Virtual Meeting)
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Join us for our monthly Zoom meeting on Wellness, held on the second Monday of... Read More »
SUSAN AUMILLER
Chapter Director
I’m Susan Aumiller and look forward to growing the Columbus Chapter of the FSHD Society. Both my son and husband were diagnosed in 2017 and we want to bring together those affected to support one another.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
