Welcome to the Columbus Chapter!
Thank you for visiting the Columbus Chapter of the FSHD Society, established July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To all who are caregivers to FSHD loved ones! Join us for our Sharegivers Hour on 4th Tuesday of every month from 8-9pm EST. You will find this to be a safe place to share and listen to each other about our day to day situations. We invite you to join us!
On Saturday, September 11, walkers and rollers stepped out to say "FSHD Ends with Me!" at the annual Columbus Walk & Roll. Our local event raised over $41,000 towards the campaign total, through participants and teams from across the state.
Stay tuned as we begin the planning for our 2022 Columbus Walk & Roll to Cure FSHD!