Welcome to the Columbus Chapter!
Thank you for visiting the Columbus Chapter of the FSHD Society which officially launched in July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
You may contact the Columbus Chapter Director, Sue Aumiller: ColumbusChapter@FSHDSociety.org
Check out some great photos from our Chapter meeting on Nov. 11th, 2018:
Upcoming Events
Apr
21
Voice of the Patient Forum for Drug Development
This meeting is the FSHD Community’s forum to present testimony by patients and family caregivers and educate the FDA on how FSHD has impacted your life or the life of your loved ones. Your input will result in a Voice of the Patient Report that will be submitted to the FDA’s Division of Neurology Products, Office of New Drugs, for inclusion in the framework used to evaluate future FSHD therapies. Your views carry great weight with the agency when it considers whether…
Find out more »Jun
27
2020 FSHD Connect
The 2020 FSHD Connect. hosted by the FSHD Society, is the largest biennial educational and networking gathering of FSHD patients and families, researchers, and clinicians.
Find out more »Sep
12
Columbus Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Columbus Walk & Roll to Cure FSHD has been scheduled! We hope to see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Susan Aumiller, with any questions! She can be reached at ColumbusChapter@fshdsociety.org We look forward to seeing you on the 12th!
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SUSAN AUMILLER
Chapter Director
I’m Susan Aumiller and look forward to forming the Columbus Chapter of the FSHD Society. Both my son and husband were diagnosed last year (2017) and we want to bring together those affected to support one another.
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