Lighting the Way to a Cure

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Welcome to the Columbus Chapter!

Thank you for visiting the Columbus Chapter of the FSHD Society, established July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Sharegiver Hour

To all who are caregivers to FSHD loved ones! Join us for our Sharegivers Hour on 4th Tuesday of every month from 8-9pm EST. You will find this to be a safe place to share and listen to each other about our day to day situations. We invite you to join us!

Make plans now to Walk & Roll with us in 2022!

Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in Columbus, we are making plans to build on the success of last year's walk and hope you will join us on Saturday, September 17th at the Coffman Park Pavilion in Dublin, OH

Want to help plan or organize the Columbus Walk & Roll to Cure FSHD? I'd love to have you! Let me know at ColumbusChapter@FSHDSociety.org

Want to know more about the Walk & Roll? Learn More

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To contact the Columbus Chapter Director, Sue Aumiller: ColumbusChapter@FSHDSociety.org

Please visit us on Facebook for updates

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Susan Aumiller

SUSAN AUMILLER

Chapter Director

I’m Susan Aumiller and look forward to growing the Columbus Chapter of the FSHD Society. Both my son and husband were diagnosed in 2017 and we want to bring together those affected to support one another.

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

Sign Up Today!