Thank you for visiting the Columbus Chapter of the FSHD Society which officially launched in July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Our community is truly unstoppable! This spring, Dan Pulskamp will be running not one, but two 100-mile races in honor of his aunts, cousins, and his mother (beloved Columbus Chapter member Linda Pulskamp!) who are all living with FSHD. Read more about his journey HERE!

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The Columbus Walk & Roll

Save the Date for Our 2020 Walk & Roll!, September 12th!

In recent weeks, all of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same.

The FSHD Society has been hard at work on a thoughtful and impactful response to the COVID-19 pandemic, bringing resources to our community to help us all through. We want to do the same on a local level. That is why we must continue to look to the future.

We hope to see you on September 12th, 2020!

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You may contact the Columbus Chapter Director, Sue Aumiller: ColumbusChapter@FSHDSociety.org

Please visit us on Facebook for updates