Welcome to the Columbus Chapter!
Thank you for visiting the Columbus Chapter of the FSHD Society, established July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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The Columbus Walk & Roll to Cure FSHD
Our 2020 Walk & Roll has gone VIRTUAL! Please join us, and invite your family and friends from wherever they are to join us too!
We will "see" you on Saturday, September 12, 2020, on Facebook Live, when all of our Chapters nationwide will join together to march toward a cure.
All of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same. This is why we must continue to move forward!
Little by little, it all adds up to a lot. To recognize and support everyone's fundraising efforts, Road Adventures of Columbus is sponsoring a special fundraising reward!
You could win a 4 night trip in a Winnebago Spirit 25B Class C RV!
Every $100 raised increases your chances. Raise $100 and receive 1 chance to win; raise $200 and receive 2 chances to win... There is no limit to how many changes you can earn through your fundraising! Sign up and get started today!
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To contact the Columbus Chapter Director, Sue Aumiller: ColumbusChapter@FSHDSociety.org
Please visit us on Facebook for updates
Our Chapter in Pictures!
Upcoming Events
Aug
20
Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »Sep
12
Columbus Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Columbus Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Susan Aumiller, with any questions! She can be reached at ColumbusChapter@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »Dec
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…
Find out more »
SUSAN AUMILLER
Chapter Director
I’m Susan Aumiller and look forward to growing the Columbus Chapter of the FSHD Society. Both my son and husband were diagnosed in 2017 and we want to bring together those affected to support one another.
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