Welcome to the Columbus Chapter!
Thank you for visiting the Columbus Chapter of the FSHD Society which officially launched in July 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
You may contact the Columbus Chapter Director, Sue Aumiller: ColumbusChapter@FSHDSociety.org
Check out some great photos from our Chapter meeting on Nov. 11th, 2018:
Upcoming Events
Mar
4
FSHD Society Radio with Julie Cohen, genetic counselor
Julie Cohen, MSc, genetic counselor 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!…
Find out more »Apr
1
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »Webinar on preparing for the Voice of the Patient Forum
Our webinar will prepare you for the Voice of the Patient Forum on April 21. The webinar is noon-1:00 pm ET | 11:00 am-noon CT | 10:00-11:00 am MT | 9:00-10:00 am PT. The Forum is the FSHD Community’s platform to present testimony by patients and family caregivers and educate the FDA on how FSHD has impacted your life or the life of your loved ones. Your input will result in a Voice of the Patient Report that will be…
Find out more »
SUSAN AUMILLER
Chapter Director
I’m Susan Aumiller and look forward to forming the Columbus Chapter of the FSHD Society. Both my son and husband were diagnosed last year (2017) and we want to bring together those affected to support one another.
Stay Informed on Local Activities
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