Welcome to the Connecticut Chapter!
Thank you for visiting the Connecticut Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Monthly Virtual Zoom Meeting
We have been doing virtual support group meetings for quite a while now, and we would love for you to join us! All are welcome – please call in from anywhere. Patients, family members, and caregivers are encouraged to participate! We meet the first Thursday of the month via Zoom web conference, 7:00pm – 8:30pm EST. We take a summer hiatus June - August, but we can set up an additional meeting as needed!
To join from your computer: https://zoom.us/j/442453571
Or Telephone: +1 646 558 8656, Meeting ID: 442 453 571
RSVP to Kathy at CTChapter@FSHDSociety.org
See Below for Additional Events
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The Connecticut Walk & Roll to Cure FSHD
Our 2020 Walk & Roll has gone VIRTUAL! Please join us, and invite your family and friends from wherever they are to join us too!
We will "see" you on Saturday, September 12, 2020 - when all of our Chapters nationwide will join together!
Click the button below to register or donate!
All of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same. This is why we must continue to move forward!
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Don’t forget to follow us on FACEBOOK
Would you like to get involved? Simply fill out the form in the sidebar.
Upcoming Events
Aug
20
Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »Sep
3
FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is: CTConnect Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org
Find out more »Connecticut Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Connecticut Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leader, Peter "Pogo" Pogozelski , with any questions! He can be reached at CTWnR@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »
KATHY SENECAL
Chapter Director
My name is Kathy Senecal, and with the help of Sarah Pashe, we have formed FSHD Connecticut Connections. We began monthly meetings, first on site at a specific location, and then found using Zoom online was convenient and reached more people. The encouragement, support, exchange of ideas, and experiences we share as a group empowers us, as well as the FSHD Society, as it moves forward towards our common goal of treatment and cure.
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!
