Thank you for visiting the Connecticut Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

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Monthly Virtual Zoom Meeting 

We have been doing virtual support group meetings for quite a while now, and we would love for you to join us! All are welcome – please call in from anywhere. Patients, family members, and caregivers are encouraged to participate! We meet the first Thursday of the month via Zoom web conference, 7:00pm – 8:30pm EST.

To join from your computer: https://zoom.us/j/442453571
Or Telephone: +1 646 558 8656, Meeting ID: 442 453 571

RSVP to Kathy at CTChapter@FSHDSociety.org

See Below for Additional Events

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The Connecticut Walk & Roll

Save the Date for Our 2020 Walk & Roll!, October 3rd!

In recent weeks, all of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same.

The FSHD Society has been hard at work on a thoughtful and impactful response to the COVID-19 pandemic, bringing resources to our community to help us all through. We want to do the same on a local level. That is why we must continue to look to the future.

We hope to see you on October 3rd, 2020!

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Don’t forget to follow us on FACEBOOK

Would you like to get involved? Simply fill out the form in the sidebar.