Welcome to the Connecticut Chapter!
Thank you for visiting the Connecticut Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Monthly Virtual Zoom Meeting
We have been doing virtual support group meetings for quite a while now, and we would love for you to join us! All are welcome – please call in from anywhere. Patients, family members, and caregivers are encouraged to participate! We meet the first Thursday of the month via Zoom web conference, 7:00pm – 8:30pm EST.
To join from your computer: https://zoom.us/j/442453571
Or Telephone: +1 646 558 8656, Meeting ID: 442 453 571
RSVP to Kathy at CTChapter@FSHDSociety.org
See Below for Additional Events
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Walk & Roll
Our first Walk & Roll to Cure FSHD took place on Sunday, Oct. 6th, 2019 in Hammonasset Beach State Park, Madison, CT.
You can still support the event by making a donation HERE!
To reach us, please email: CTChapter@fshdsociety.org
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Don’t forget to follow us on FACEBOOK
Would you like to get involved? Simply fill out the form in the sidebar.
Upcoming Events
Feb
6
FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! Join from your computer or tablet: https://zoom.us/j/442453571 Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org
Find out more »Mar
5
FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! Join from your computer or tablet: https://zoom.us/j/442453571 Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org
Find out more »Apr
2
FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! Join from your computer or tablet: https://zoom.us/j/442453571 Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org
Find out more »
KATHY SENECAL
Chapter Director
My name is Kathy Senecal, and with the help of Sarah Pashe, formed FSHD Connecticut Connections last year. We began monthly meetings, first on site at a specific location, and then found using Zoom was convenient and reached more people. The encouragement, support, exchange of ideas, and experiences we share as a group empowers us, as well as the Society, as it moves forward towards our common goal of treatment and cure.
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!