Welcome to the East Tennessee Chapter!
Thank you for visiting the East Tennessee Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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East Tennessee Walk & Roll to Cure FSHD a Success!
Our 2020 Virtual Walk & Roll was fantastic, thanks to all of you! Our chapter overcame all the obstacles 2020 threw at us. You invited your family and friends and they showed up!
On Saturday, September 12, 2020 we joined with Chapters nationwide to celebrate in a 4-hour Facebook livestream event. It was awesome.
Together we are celebrating more than a half million raised nationwide!
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To contact us directly, please email: EastTNChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the East TN chapter
Upcoming Events
Dec
1
FSHD Society Radiothon
#GivingTuesday is a global day of giving fueled by the power of social media and collaboration. Join us today for our second annual GivingTuesday Radiothon to raise funds and worldwide awareness of Facioscapulohumeral muscular dystrophy (FSHD). Streamed over Facebook Live, our intrepid host Tim Hollenback will conduct nonstop interviews from 8:00 a.m. to 10:00 p.m. Central Time with members of our community—activists, celebrities, scientists, doctors, and other people doing awesome things. Click here to view the full guest line-up and…
Find out more »FSHD Society Radio with civil rights lawyer Ed Barocas
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. Our guest tonight is Eddie Barocas, an extraordinary champion for underdogs, who until recently served as Legal Director of the American Civil Liberties Union of New Jersey. You can read more about him on our blog. He will talk about his amazing life and how FSHD…
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Webinar: COVID-19 Update
3:00 pm ET | 2:00 pm CT | 1:00 pm MT | 12:00 pm PT. Last spring, shortly after states began locking down, Drs. Ghinwa Dumyati and Rabi Tawil from the University of Rochester presented a webinar on the COVID-19 pandemic. In the eight months since, researchers around the world have worked at a breakneck pace to understand how the virus spreads, how it affects patients, how to treat it, and ultimately how to prevent it through a vaccine. With…
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JENNIE HARRIMAN
Chapter Director
Once upon a time, a little girl named Jennie had a crooked smile. She struggled to cross the monkey bars on the playground or do sit-ups.She had her own way of drinking through a straw and could not whistle.
When she grew up, she had a beautiful baby girl. She raised her on her own, as a single mother. As Jennie got older, it became difficult for her to walk up hills or stairs. When she was diagnosed with FSH at age 36, she discovered a reason for these things that made her unique.
At age 47, her legs became weaker and she started using a power chair. She searched and searched and went to four different physical therapists before finding her magic PT. After six months in a chair, Jennie starting walking again. She still does her exercises regularly to keep walking.
Hi, I’m Jennie. To help find a cure for my daughter and others with FSH, I hope this chapter will be a place to share, learn, and grow.
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