Welcome to the East Tennessee Chapter!
Thank you for visiting the East Tennessee Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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East Tennessee Walk & Roll to Cure FSHD a Success!
Our 2020 Virtual Walk & Roll was fantastic, thanks to all of you! Our chapter overcame all the obstacles 2020 threw at us. You invited your family and friends and they showed up!
On Saturday, September 12, 2020 we joined with Chapters nationwide to celebrate in a 4-hour Facebook livestream event. It was awesome.
Did you participate? You can still earn some great rewards. The deadline for prizes is September 25th. Have some fun pictures or video to share? Add them to our google folder HERE
If you haven't had a chance to chip in, it's not too late to help us reach our goal.
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To contact us directly, please email: EastTNChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the East TN chapter
Upcoming Events
Oct
1
Webinar: COVID-19 Response Survey report
1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. Leann Lewis, MSGC Katy Eichinger, DPT This past spring, the FSHD Society and FSHD UK distributed a survey from the University of Rochester to assess how the neuromuscular patient community was responding to the social distancing policies imposed by the COVID-19 pandemic. We are so grateful to the hundreds of you who responded. The key investigators, Leann Lewis and Katy Eichinger, will present their findings…
Find out more »Dec
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…
Find out more »
JENNIE HARRIMAN
Chapter Director
Once upon a time, a little girl named Jennie had a crooked smile. She struggled to cross the monkey bars on the playground or do sit-ups.She had her own way of drinking through a straw and could not whistle.
When she grew up, she had a beautiful baby girl. She raised her on her own, as a single mother. As Jennie got older, it became difficult for her to walk up hills or stairs. When she was diagnosed with FSH at age 36, she discovered a reason for these things that made her unique.
At age 47, her legs became weaker and she started using a power chair. She searched and searched and went to four different physical therapists before finding her magic PT. After six months in a chair, Jennie starting walking again. She still does her exercises regularly to keep walking.
Hi, I’m Jennie. To help find a cure for my daughter and others with FSH, I hope this chapter will be a place to share, learn, and grow.
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