Welcome to the East Tennessee Chapter!
Thank you for visiting the East Tennessee Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Thank you for supporting the Walk & Roll in 2022!
A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Saturday, Nov. 5th at Victor Ashe Park! We are thrilled to announce that in our inaugural year, we raised over $3,500! We thank you for your support!
Want to know more about the Walk & Roll? Learn More
To contact us directly, please email: EastTNChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the East TN chapter
Upcoming Events
FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, March 23rd On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »
Feeling Fit with FSHD: Hands and arms part 2
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »
FSHD University: Novel treatment strategies for FSHD
Zoom web conference1:30 PM ET | 12:30 PM CT | 11:30 AM MT | 10:30 AM PT Nizar Saad, PhD Nizar Saad, PhD is an assistant professor at the Center for Gene... Read More »
CANDICE NORMAN
Chapter Director
Candice lives in Knoxville, Tennessee with her husband, Michael, and their two children. She earned a degree in education from Tennessee Wesleyan with a focus in math and science. Since then, she has built a photography business and worked in graphic design.
Her FSHD journey started in early 2018 when she began falling without warning.
One instance occurred during a photo shoot where she fell trying to step backward. To get in better shape, she hired a personal trainer who first brought to her attention the correlation between her symptoms and those associated with FSHD. She had not heard of the disease prior to that day. While many symptoms had been present since childhood, they went largely unnoticed. Her goals to raise awareness about this disease stem from those experiences. She looks forward to helping patients, caregivers, and providers by raising awareness, providing support, and fundraising with the FSHD Society and its members.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
