Welcome to the Greater Philadelphia Chapter!
Thank you for visiting the Greater Philadelphia Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Our 2020 Walk & Roll has gone VIRTUAL! Please join us, and invite your family and friends from wherever they are to join us too!
We will "see" you on Saturday, September 12, 2020 - when all of our Chapters nationwide will join together!
Click the button below to register or donate!
All of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same. This is why we must continue to move forward!
To contact us directly, please email: PhiladelphiaChapter@fshdsociety.org
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Please join us! Simply fill out the form in the sidebar to become a member of the Greater Philadelphia chapter.
Upcoming Events › Greater Philadelphia Chapter Events
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…Find out more »
Please mark your calendars: The 2020 Greater Philly Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk & Roll Leaders, Taylor & Colin Quigg, with any questions! They can be reached at PhillyWnR@fshdsociety.org We look forward to “seeing” you on September 12th!Find out more »
Please mark your calendars: The 2020 Greater Philadelphia Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leaders, Taylor and Colin Quigg, with any questions! They can be reached at PhillyWnR@FSHDSociety.org We look forward to "seeing" you on September 12th!Find out more »