Welcome to the Greater Philadelphia Chapter!
Thank you for visiting the Greater Philadelphia Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Volunteer Spotlight: Taylor Quigg
Hear from your local activist, Taylor Quigg, about her journey with FSHD, the power of connection, and her vision for the future.