Welcome to the Idaho Chapter!
Founded by Minette Hale in January 2020, the goals of the Chapter Program here in the Idaho area are to:
- Increase awareness and educate families throughout Idaho.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Please join our chapter via the "Stay informed on Local Activities" form on the right. We'll make sure you receive updates about future events and plans!
Please visit our Facebook page! @FSHD-Society-Idaho
The Idaho Walk & Roll to Cure FSHD
Our 2020 Walk & Roll has gone VIRTUAL! Please join us, and invite your family and friends from wherever they are to join us too!
We will "see" you on Saturday, September 12, 2020 - when all of our Chapters nationwide will join together!
Click the button below to register or donate!
All of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same. This is why we must continue to move forward!
Kick Off Party & Chapter Launch
We officially launched our chapter with a small, but mighty gathering on July 18.
If you want to get involved and get to know others in our area that are impacted by FSHD, sign up to join our community with the form on the right. We look forward to getting to know you and working together to end FSHD.
Upcoming Events
Aug
20
Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »Sep
12
Idaho Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Idaho Walk & Roll to Cure FSHD has gone VIRTUAL We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Minette Hale, with any questions! She can be reached at IdahoChapter@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »Dec
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…
Find out more »
Meet Your Chapter Director
Minette Hale
Minette comes from a strong family line of FSH Muscular Dystrophy. She and 6 of her 8 siblings have inherited the disorder from her father and grandmother. It has been a huge part of not only her life, but her immediate and extended family as well. Having people in her life who can relate to her struggles has been a strength. She hopes, as a chapter director, to help others feel support from their FSHD family as we are all brothers and sisters in this disease.
Stay Informed on Local Activities
Not already a member of our FSHD Community? Sign-up and get connected!
