Welcome to the Idaho Chapter!
Founded by Minette Hale in January 2020, the goals of the Chapter Program here in the Idaho area are to:
- Increase awareness and educate families throughout Idaho.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Please join our chapter via the "Stay informed on Local Activities" form on the right. We'll make sure you receive updates about future events and plans!
Please visit our Facebook page! @FSHD-Society-Idaho
Idaho Walk & Roll to Cure FSHD a Success!
Our 2020 Virtual Walk & Roll was fantastic, thanks to all of you! Our chapter overcame all the obstacles 2020 threw at us. You invited your family and friends and they showed up!
On Saturday, September 12, 2020 we joined with Chapters nationwide to celebrate in a 4-hour Facebook livestream event. It was awesome.
Did you participate? You can still earn some great rewards. The deadline for prizes is September 25th. Have some fun pictures or video to share? Add them to our google folder HERE
If you haven't had a chance to chip in, it's not too late to help us reach our goal.
Upcoming Events
Oct
24
The 5th Annual UPIN FAMILY CONFERENCE PROGRAM
The FSHD Society is happy to support the 5th Annual UPIN FAMILY CONFERENCE PROGRAM Since 2015, the Utah Program for Inherited Neuromuscular Disorders (UPIN) has hosted an annual conference to bring together leading researchers, clinicians, and families living with neuromuscular disorders. This year the event will be VIRTUAL! UPIN sees this as an opportunity for innovative and creative programming, opening pathways to diverse connections within the Neuromuscular community that transcend the confines of space. This year’s virtual conference will be…
Find out more »Dec
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…
Find out more »
Meet Your Chapter Director
Minette Hale
Minette comes from a strong family line of FSH Muscular Dystrophy. She and 6 of her 8 siblings have inherited the disorder from her father and grandmother. It has been a huge part of not only her life, but her immediate and extended family as well. Having people in her life who can relate to her struggles has been a strength. She hopes, as a chapter director, to help others feel support from their FSHD family as we are all brothers and sisters in this disease.
Stay Informed on Local Activities
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