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Idaho Chapter

Home / Connect / Local Chapters / Idaho Chapter

Welcome to the Idaho Chapter!

Founded by Minette Hale in January 2020, the goals of the Chapter Program here in the Idaho area are to:

  • Increase awareness and educate families throughout Idaho.
  • Help build connections among patients, care givers, health care providers and others affected by this disease.
  • Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSHD.
  • Last but not least let’s HAVE SOME FUN while we accomplish these goals!

Please join our chapter via the "Stay informed on Local Activities" form on the right. We'll make sure you receive updates about future events and plans!

Please visit our Facebook page! @FSHD-Society-Idaho

Idaho Talent Fest to Cure FSH Muscular Dystrophy

We're Gearing up for
Idaho Talent Fest 2023!

Make plans now to be a part of this event in 2023
Saturday, April 29th

LEARN MORE HERE

Watch the 2022 Idaho Talent Fest!

Watch the 2021 Idaho Talent Fest!

Follow the Idaho Talent Fest on Facebook, Instagram and YouTube!

Volunteer Spotlight: Minette Hale

Hear from your local Chapter Director, Minette Hale, about her journey with FSHD, how she found her place at the FSHD Society, and her advice for folks thinking about getting more involved.

https://www.fshdsociety.org/wp-content/uploads/2021/04/minetteidaho.mp4

Thank you for supporting the Walk & Roll in 2022!

This year, we combined the Utah Chapter and the Idaho Chapter Walk & Rolls to form the Intermountain Walk & Roll to Cure FSHD! A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Saturday, September 17th in Canyon Rim Park in Millcreek, UT! We are thrilled to announce that we raised over $13,000!!! There is still time to contribute, and you can do so here.

Want to know more about the Walk & Roll? Learn More

Upcoming Events

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Today

March 2023

Tue 28
Featured Featured Mar 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

April 2023

Mon 10
Wellness Hour
Featured Featured Apr 10 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 11
Featured Featured Apr 11 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, April 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

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Minette Hale

Meet Your Chapter Director

Minette Hale

Minette comes from a strong family line of FSH Muscular Dystrophy.  She and 6 of her 8 siblings have inherited  the disorder from her father and grandmother. It has been a huge part of not only her life, but her immediate and extended family as well.  Having people in her life who can relate to her struggles has been a strength. She hopes, as a chapter director, to help others feel support from their FSHD family as we are all brothers and sisters in this disease.

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

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General Mailing Address:

75 North Main Street, Suite 1073
Randolph, MA 02368 U.S.A.

Mail Donations to:

Department 960
PO Box 4106
Woburn, MA 01888-4106

(781) 301-6060

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