Lighting the Way to a Cure

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Welcome to the Idaho Chapter!

Founded by Minette Hale in January 2020, the goals of the Chapter Program here in the Idaho area are to:

  • Increase awareness and educate families throughout Idaho.
  • Help build connections among patients, care givers, health care providers and others affected by this disease.
  • Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSHD.
  • Last but not least let’s HAVE SOME FUN while we accomplish these goals!

Please join our chapter via the "Stay informed on Local Activities" form on the right. We'll make sure you receive updates about future events and plans!

Please visit our Facebook page! @FSHD-Society-Idaho

Volunteer Spotlight: Minette Hale

Hear from your local Chapter Director, Minette Hale, about her journey with FSHD, how she found her place at the FSHD Society, and her advice for folks thinking about getting more involved.

We're Gearing up for
Idaho Talent Fest 2022!

Make plans now to be a part of this event in 2022
Saturday, April 9th

Online auditions January 10 - February 13  |  Online voting February 15 - 27  |  March 1, 2022 Finalists Announced!

Watch the 2021 Idaho Talent Fest!

2021 Idaho Talent Fest Photo Album

Follow the Idaho Talent Fest on Facebook, Instagram and YouTube!

Make plans now to Walk & Roll with us in 2022!

Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in Idaho, we are making plans to build on the success of last year's walk and hope you will join us on Saturday, September 17th at Sugar House Park in Utah!

Want to help plan or organize the Utah/Idaho Walk & Roll to Cure FSHD? I'd love to have you! Let me know at UtahWnR@FSHDSociety.org

Want to know more about the Walk & Roll? Learn More

Upcoming Events

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Minette Hale

Meet Your Chapter Director

Minette Hale

Minette comes from a strong family line of FSH Muscular Dystrophy.  She and 6 of her 8 siblings have inherited  the disorder from her father and grandmother. It has been a huge part of not only her life, but her immediate and extended family as well.  Having people in her life who can relate to her struggles has been a strength. She hopes, as a chapter director, to help others feel support from their FSHD family as we are all brothers and sisters in this disease.

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

Sign Up Today!