Welcome to the Idaho Chapter!
Founded by Minette Hale in January 2020, the goals of the Chapter Program here in the Idaho area are to:
- Increase awareness and educate families throughout Idaho.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSHD.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Please join our chapter via the "Stay informed on Local Activities" form on the right. We'll make sure you receive updates about future events and plans!
On Saturday, September 18, walkers and rollers stepped out to say "FSHD Ends with Me!" at the annual Idaho Walk & Roll. Our local event raised nearly $14,000 towards the campaign total, through participants and teams from across the state.
Stay tuned as we begin the planning for our 2022 Idaho Walk & Roll to Cure FSHD!
The First Annual Idaho Talent Fest was a Tremendous Success!
Make plans now to be a part of this event in 2022 - Saturday, April 9th
Online auditions January 10 - February 13 | Online voting February 15 - 27 | March 1, 2022 Finalists Announced!
Volunteer Spotlight: Minette Hale
Hear from your local Chapter Director, Minette Hale, about her journey with FSHD, how she found her place at the FSHD Society, and her advice for folks thinking about getting more involved.