Welcome to the Idaho Chapter!
Founded by Minette Hale in January 2020, the goals of the Chapter Program here in the Idaho area are to:
- Increase awareness and educate families throughout Idaho.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSHD.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Please join our chapter via the "Stay informed on Local Activities" form on the right. We'll make sure you receive updates about future events and plans!
Please visit our Facebook page! @FSHD-Society-Idaho
We're Gearing up for
Idaho Talent Fest 2023!
Make plans now to be a part of this event in 2023
Saturday, April 29th
Volunteer Spotlight: Minette Hale
Hear from your local Chapter Director, Minette Hale, about her journey with FSHD, how she found her place at the FSHD Society, and her advice for folks thinking about getting more involved.
Thank you for supporting the Walk & Roll in 2022!
This year, we combined the Utah Chapter and the Idaho Chapter Walk & Rolls to form the Intermountain Walk & Roll to Cure FSHD! A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Saturday, September 17th in Canyon Rim Park in Millcreek, UT! We are thrilled to announce that we raised over $13,000!!! There is still time to contribute, and you can do so here.
Want to know more about the Walk & Roll? Learn More
Upcoming Events
CarePartner Hour
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Wellness Hour
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »
FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, April 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »
Meet Your Chapter Director
Minette Hale
Minette comes from a strong family line of FSH Muscular Dystrophy. She and 6 of her 8 siblings have inherited the disorder from her father and grandmother. It has been a huge part of not only her life, but her immediate and extended family as well. Having people in her life who can relate to her struggles has been a strength. She hopes, as a chapter director, to help others feel support from their FSHD family as we are all brothers and sisters in this disease.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
