Welcome to the Kansas City Chapter!
Thank you for visiting the Kansas City Chapter of the FSHD Society which officially launched in August 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Join us for the 2023 Walk & Roll to Cure FSHD!
The 2023 Kansas City Chapter Walk & Roll to Cure FSHD is scheduled for Saturday, September 30, at Macken Park in North Kansas City.
We have partnered with KUMC to hold this amazing event which moves us closer to our goal of disease-modifying treatments to families by 2025. Michaela Walker and Patrick McKenney are our new Walk & Roll leaders! Help us meet our fundraising goal of $50,000 this year and light the way to a cure!
Learn more about the 2023 Walk & Roll to Cure FSHD here!