Welcome to the Los Angeles Chapter!
Thank you for visiting the Los Angeles Chapter of the FSHD Society which officially launched in August 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Los Angeles Walk & Roll to Cure FSHD a Success!
Our 2020 Virtual Walk & Roll was fantastic, thanks to all of you! Our chapter overcame all the obstacles 2020 threw at us. You invited your family and friends and they showed up!
On Saturday, September 12, 2020 we joined with Chapters nationwide to celebrate in a 4-hour Facebook livestream event. It was awesome.
Together we are celebrating more than a half million raised nationwide!
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To contact us directly, please email: LosAngelesChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Would you like to get involved? Simply fill out the form in the sidebar. We are looking for a new chapter leader or leadership committee. Please consider joining us!
Upcoming Events
Dec
1
FSHD Society Radiothon
#GivingTuesday is a global day of giving fueled by the power of social media and collaboration. Join us today for our second annual GivingTuesday Radiothon to raise funds and worldwide awareness of Facioscapulohumeral muscular dystrophy (FSHD). Streamed over Facebook Live, our intrepid host Tim Hollenback will conduct nonstop interviews from 8:00 a.m. to 10:00 p.m. Central Time with members of our community—activists, celebrities, scientists, doctors, and other people doing awesome things. Click here to view the full guest line-up and…
Find out more »FSHD Society Radio with civil rights lawyer Ed Barocas
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. Our guest tonight is Eddie Barocas, an extraordinary champion for underdogs, who until recently served as Legal Director of the American Civil Liberties Union of New Jersey. You can read more about him on our blog. He will talk about his amazing life and how FSHD…
Find out more »California Virtual Year-End Meeting and Celebration
Holiday Meeting! Sunday, December 6, 2020 4:00pm – 5:30pm Pacific Time Join Us Here You’re invited to the California Virtual Year-End Holiday Meeting!! Our Bay Area, San Diego, Los Angeles, and Sacramento Chapters of the FSHD Society are joining for our Holiday Meeting! This will be a chance to visit with friends – and meet new ones in our part of the world – before 2021, as we all could use time to connect and some time together. So please mark…
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Chapter Director
We are looking for leadership for this important chapter! We welcome all interested parties to contact us and inquire about getting involved as a member of the chapter committee or to be considered for the important role of Chapter Director
Contact Beth Johnston at Beth.Johnston@FSHDSociety.org
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!
