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Los Angeles Chapter

Home / Connect / Local Chapters / Los Angeles Chapter

Welcome to the Los Angeles Chapter!

Thank you for visiting the Los Angeles Chapter of the FSHD Society which officially launched in August 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

The 2023 California Walk & Roll to Cure FSHD

REGISTRATION IS OPEN!

Mark your calendar for Sunday, September 17th, 2023 for our Annual Los Angeles Walk & Roll to Cure FSHD at Kite Field in Van Nuys, CA. Walk & Roll to Cure FSHD is an event that unites the FSHD community to raise awareness of FSHD and move us closer to our goal of disease-modifying treatments to families by 2025. Help us meet our fundraising goal of $50,000 this year and light the way to a cure!

Learn more about the 2023 Walk & Roll to Cure FSHD here!

Upcoming Events

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Today

September 2023

Tue 26
Featured Featured Sep 26 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Sep 28 @ 8:00 am

FSHD Radio: Hot off the Press – Mel Hayes of Fulcrum Therapeutics on the REACH Trial

Facebook and YouTube

Thursday, September 28th  14:00 PM CET | 13:00 PM UK | 8:00 AM ET | 7:00 AM CT | 6:00 AM MT | 5:00 AM PT Earlier this month, Fulcrum... Read More »

Thu 28
Featured Featured Sep 28 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Why exercise?

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join us for our second session of... Read More »

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James Rice

Chapter Director

I'm James Rice and I was born and raised in Southern California in Orange County. I was diagnosed with FSHD via genetic testing when I was 19 as a freshman at Michigan State University. I moved to Los Angeles in 2015 to start a career in Civil Engineering. Outside of my career, I like being outdoors as much as I can, bodyboarding, playing video games, music, and volunteering. I'm grateful to have the opportunity to be the FSHD Society Chapter Director in Los Angeles. I look forward to working with everyone as we work towards a treatment for this condition.

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General Mailing Address:

75 North Main Street, Suite 1073
Randolph, MA 02368 U.S.A.

Mail Donations to:

FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

(781) 301-6060

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