Welcome to the Los Angeles Chapter!
Thank you for visiting the Los Angeles Chapter of the FSHD Society which officially launched in August 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
California Walk & Roll to Cure FSHD - September 18, 2021!
To contact us directly, please email: LosAngelesChapter@fshdsociety.org
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Would you like to get involved? Simply fill out the form in the sidebar. We are looking for a new chapter leader or leadership committee. Please consider joining us!
Past Events › All Chapters
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this month is our very own Jamshid Arjomand, PhD, chief science officer. He'll update you about the latest research and drug development advances (that he's allowed to talk about). If you have questions about FSHD research, now's your chance to get them answered! Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts,…Find out more »
This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). This month we will talk about transitions, which are an inevitable fact of life for anyone living with a progressive condition like FSHD. How have you coped when you realized that some skill or function is no longer what it used to be? Are you in the…Find out more »
The Pacific Northwest Chapter is inviting you to their Sip & Share Virtual Art Show Saturday, June 19th 3:00-4:30 Pacific/4:00-5:30 Mountain/5:00-6:30 Central/6:00-7:30 Eastern Two virtual venues! - Mixology with Susie - Share & Show Art with Selina If you have art to share, please submit it HERE. Also please check out Mixology with Susie. She will teach us to how to make on of these specials cocktails should you choose to raise a glass with us. We’ll spend some time…Find out more »