Welcome to the Mid-Atlantic Chapter!
Thank you for visiting the Mid-Atlantic Chapter of the FSHD Society which officially launched in 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
On Saturday, September 18, walkers and rollers stepped out to say "FSHD Ends with Me!" at the annual Mid-Atlantic Walk & Roll. Our local event raised over $14,000 towards the campaign total, through participants and teams from across the state.
Stay tuned as we begin the planning for our 2022 Mid-Atlantic Walk & Roll to Cure FSHD!
Mid-Atlantic Pickin' for a Cure benefit concert - returning in 2021!
To contact us directly, please email: MidAtlanticChapter@fshdsociety.org
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Would you like to get involved? Simply fill out the form in the sidebar.