NE Florida Chapter
Thank you for visiting the NE Florida Chapter of the FSHD Society which officially launched in March 2021. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Get ready for another year of fun and fundraising! Walk and Roll with your family, friends, and neighbors anytime during the month of September, then be sure to join us at our Thank You celebration on Saturday, September 16th, where we'll be back at the Jacksonville Jumbo Shrimps baseball game! Get started by registering here! We thank you for your support.
To contact us directly, please email: NEFloridaChapter@FSHDSociety.org
Please join us! Simply fill out the form in the sidebar to become a member of the NE Florida chapter.