NE Florida Chapter
Thank you for visiting the NE Florida Chapter of the FSHD Society which officially launched in March 2021. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Make plans now to Walk & Roll with us in 2022!
Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in NE Florida, we are making plans to build on the success of last year's walk and hope you will join us!
Want to help plan or organize the NE Florida Walk & Roll to Cure FSHD? I'd love to have you! Let me know at NEFloridaChapter@FSHDSociety.org
Want to know more about the Walk & Roll? Learn More
To contact us directly, please email: NEFloridaChapter@FSHDSociety.org
Please join us! Simply fill out the form in the sidebar to become a member of the NE Florida chapter.