Welcome to the New England Chapter!
Thank you for visiting the New England Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Make plans now to Walk & Roll with us!
Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in New England, we are making plans to build on the success of last year's walk and hope you will join us on Saturday, October 1st!
Want to help plan or organize the New England Walk & Roll to Cure FSHD? We'd love to have you! Let us know at alexipappas19@gmail.com
Want to know more about the Walk & Roll? Learn More
To reach us directly, please email: NewEnglandChapter@fshdsociety.org.
Don’t forget to follow us on FACEBOOK!
Upcoming Events
Women on Wellness – Transitions in mobility
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is transitions in mobility. How do... Read More »
Wellness Hour – How do I talk to my family about FSHD?
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT FSHD is a familial condition, and yet family members can hold different attitudes about how... Read More »
FSHD Radio: Community Profiles with Dylan King
Facebook and YouTubeTuesday, July 12th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 2nd Tuesday of every month, join us for FSHD Radio:... Read More »