Welcome to the New England Chapter!
Thank you for visiting the New England Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
On Saturday, September 11, walkers and rollers stepped out to say "FSHD Ends with Me!" at the annual New England Walk & Roll. Our local event raised over $50,000 towards the campaign total, through participants and teams from across the state.
Stay tuned as we begin the planning for our 2022 New England Walk & Roll to Cure FSHD!