Welcome to the New England Chapter!
Thank you for visiting the New England Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
A huge THANK YOU to everyone who donated, volunteered, and showed their support on Saturday, Oct. 1st in Boston at the Optum lounge! We are thrilled to announce that together, we have raised over $90,000 this year!! There is still time to contribute - we are so close to hitting $100,000! You can support us here: https://team.fshdsociety.org/newalkroll
Want to know more about the Walk & Roll? Learn More