Welcome to the New England Chapter!
Thank you for visiting the New England Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in New England, we are making plans to build on the success of last year's walk and hope you will join us on Saturday, October 1st!
Want to help plan or organize the New England Walk & Roll to Cure FSHD? We'd love to have you! Let us know at firstname.lastname@example.org
Want to know more about the Walk & Roll? Learn More