Welcome to the New England Chapter!
Thank you for visiting the New England Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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New England Walk & Roll to Cure FSHD a Success!
Our 2020 Virtual Walk & Roll was fantastic, thanks to all of you! Our chapter overcame all the obstacles 2020 threw at us. You invited your family and friends and they showed up!
On Saturday, September 12, 2020 we joined with Chapters nationwide to celebrate in a 4-hour Facebook livestream event. It was awesome.
Did you participate? You can still earn some great rewards. The deadline for prizes is September 25th. Have some fun pictures or video to share? Add them to our google folder HERE
If you haven't had a chance to chip in, it's not too late to help us reach our goal.
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To reach us directly, please email: NewEnglandChapter@fshdsociety.org.
Don’t forget to follow us on FACEBOOK!
Upcoming Events
Nov
15
New England Chapter Meeting
November 15, 12:00PM ET Hey, New Englanders! It’s been a while since we’ve been able to see each other, and we miss you! We know there are some new folks out there as well that we want to welcome into our community. Until we can get together in-person again, we’d love for you to join us for a little getting-to-know-each-other social hour over Zoom! Mark your calendars for 12-1pm on Nov. 15th (don’t worry, it’s an 8-o’clock Pats game). On…
Find out more »Dec
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…
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KRISTIN ZWICKAU
Chapter Director
Kristin first got involved with the FSHD Society in October 2017 after her daughter was clinically diagnosed with FSHD 2, the first in their family that they know of. They’d never heard about FSH Muscular Dystrophy before, and have jumped at the chance to do and learn as much as possible. With support and hope, FSHD has a chance of being cured sooner rather than later!
Kristin is passionate about people. Currently Kristin is the Director of Global Talent Aquistion (TA) for Care.com. Her mission is to building a TA function that supports the company in building best in class teams! Kristin is fascinated by learning about the twists and turns in people’s career paths, leading them to where they are today. Kristin also embraces a customized, personal approach to building partnerships. She does not believe in a one size fits all mentality.
Kristin enjoys spending time traveling, skiing and hiking with her family and in a quiet moment she also enjoys a good book.
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!
