Welcome to the New England Chapter!
Thank you for visiting the New England Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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The New England Walk & Roll to Cure FSHD
Our 2020 Walk & Roll has gone VIRTUAL! Please join us, and invite your family and friends from wherever they are to join us too!
We will "see" you on Saturday, September 12, 2020 - when all of our Chapters nationwide will join together!
Click the button below to register or donate!
All of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same. This is why we must continue to move forward!
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To reach us directly, please email: NewEnglandChapter@fshdsociety.org.
Don’t forget to follow us on FACEBOOK!
Upcoming Events
Aug
20
Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »Sep
12
New England Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 New England Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Fundraising Leader, Lexi Pappas, with any questions! She can be reached at alexipappas19@gmail.com We look forward to “seeing” you on September 12th!
Find out more »Dec
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…
Find out more »
KRISTIN ZWICKAU
Chapter Director
Kristin first got involved with the FSHD Society in October 2017 after her daughter was clinically diagnosed with FSHD 2, the first in their family that they know of. They’d never heard about FSH Muscular Dystrophy before, and have jumped at the chance to do and learn as much as possible. With support and hope, FSHD has a chance of being cured sooner rather than later!
Kristin is passionate about people. Currently Kristin is the Director of Global Talent Aquistion (TA) for Care.com. Her mission is to building a TA function that supports the company in building best in class teams! Kristin is fascinated by learning about the twists and turns in people’s career paths, leading them to where they are today. Kristin also embraces a customized, personal approach to building partnerships. She does not believe in a one size fits all mentality.
Kristin enjoys spending time traveling, skiing and hiking with her family and in a quiet moment she also enjoys a good book.
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!
