Welcome to the New England Chapter!
Thank you for visiting the New England Chapter of the FSHD Society which officially launched in June 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To reach us directly, please email: NewEnglandChapter@fshdsociety.org.
Don’t forget to follow us on FACEBOOK!
Upcoming Events
Jun
3
FSHD Society Radio with Mitch and Bill
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Tim and his guests would…
Find out more »FSHD Radio Sequester Camp
7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…
Find out more »FSHD Radio Sequester Camp
7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…
Find out more »
KRISTIN ZWICKAU
Chapter Director
Kristin first got involved with the FSHD Society in October 2017 after her daughter was clinically diagnosed with FSHD 2, the first in their family that they know of. They’d never heard about FSH Muscular Dystrophy before, and have jumped at the chance to do and learn as much as possible. With support and hope, FSHD has a chance of being cured sooner rather than later!
Kristin is passionate about people. Currently Kristin is the Director of Global Talent Aquistion (TA) for Care.com. Her mission is to building a TA function that supports the company in building best in class teams! Kristin is fascinated by learning about the twists and turns in people’s career paths, leading them to where they are today. Kristin also embraces a customized, personal approach to building partnerships. She does not believe in a one size fits all mentality.
Kristin enjoys spending time traveling, skiing and hiking with her family and in a quiet moment she also enjoys a good book.
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!
