Welcome to the New England Chapter!
Thank you for visiting the New England Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Save the Date for the 2023 Walk & Roll to Cure FSHD!
Get ready for another year of fun and fundraising! Walk and Roll with your family, friends, and neighbors anytime during the month of September, then be sure to join us at our Thank You celebration on Saturday, October 7th, where we'll be back at the Optum building in Boston. Get started by registering here! We thank you for your support.
Women on Wellness – Instrumental activities of daily livingZoom Virtual Meeting
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is what we call "Instrumental ADL’s... Read More »
Feeling Fit with FSHD – Bill HerzbergZoom Virtual Meeting
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Mitch Wade and Bill Herzberg Last month... Read More »
Wellness Hour Movie Night – Crip CampZoom Virtual Meeting
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Change of topic! Instead of Happy Hour, this month we will enjoy another Movie Night... Read More »