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Welcome to the New York City-area Chapter!
Thank you for visiting the New York City-area Chapter of the FSHD Society which serves all the areas in-and-around New York, including New Jersey. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Magic for a Cure: Huge Success!
A slideshow from our wonderful "Magic for a Cure" event in November 2021 - courtesy Jennifer Nilsen Photography, featuring the talented John David Stessel Magician!
https://jennifer-nilsen-photography-48533.smartslides.com...
Stay tuned as we plan our Magic for a Cure event, coming the Fall of 2022!
To contact us directly, please email: NYCChapter@fshdsociety.org.
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the NYC chapter
Upcoming Events
Women on Wellness – Transitions in mobility
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is transitions in mobility. How do... Read More »
Wellness Hour – How do I talk to my family about FSHD?
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT FSHD is a familial condition, and yet family members can hold different attitudes about how... Read More »
FSHD Radio: Community Profiles with Dylan King
Facebook and YouTubeTuesday, July 12th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 2nd Tuesday of every month, join us for FSHD Radio:... Read More »
DAVID RUBIN
Chapter Director
I am David Rubin. I am excited to re-ignite and lead the NY Chapter of FSHD Society.
I was diagnosed with FSHD 16 years ago at the age of 49 and have experienced slow but consistent muscle loss.
I am recently retired after spending 40 years in business advisory leadership roles. Today I spend my time as a board member of FSHD Society, pursing a variety of entrepreneurial opportunities and being a grandfather.
Stay Informed on Chapter Activities
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
