Welcome to the New York City-area Chapter!
Thank you for visiting the New York City-area Chapter of the FSHD Society which serves all the areas in-and-around New York, including New Jersey. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Volunteer Spotlight: Peter Gangemi
Hear from your local Chapter Director, Peter Gangemi, about his journey with FSHD, how he got involved with the FSHD Society, and his advice to the newly diagnosed.
To contact us directly, please email: NYCChapter@fshdsociety.org.
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the NYC chapter
Upcoming Events
Sharegiver Hour
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Women on Wellness
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »
Wellness Hour (Virtual Meeting)
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Join us for our monthly Zoom meeting on Wellness, held on the second Monday of... Read More »
PETER GANGEMI
Chapter Director
My name is Peter Gangemi and I am honored to be the New York Chapter Director of the FSHD Society. I am 43 years old and was diagnosed with FSH in 2013 with a mild to moderate form. I have been around FSH my whole life as my father was diagnosed in 1980 when I was just 2 years old. Living with FSH has posed its challenges, but it has also helped shape me into the man I am today. I feel many of the blessings I have are due in part to the fact that FSH has taught me not to give up and to be strong even in life’s toughest moments.
I live in New Jersey with my lovely wife Francesca and our 2 cats Chauncey and Nightmare and our Boxer dog Rocky (He’s my boy!).
I enjoy watching sports (I am a huge Mets fan), playing guitar, cooking, reading, watching movies, and learning anything new. I have been working in the IT Field for 22 years and have achieved my bachelor’s degree in computer science from St. John’s University and my master’s degree in IT Management from Southern New Hampshire University.
I am proud to be a part of a wonderful Team and look forward to contributing to the growth of our community.
Stay Informed on Chapter Activities
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
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