Welcome to the New York/New Jersey-area Chapter!
Thank you for visiting the New York/New Jersey-area Chapter of the FSHD Society which serves all the areas in-and-around New York, including New Jersey. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
The The 2023 New Jersey Shore Walk & Roll to Cure FSHD was a smashing success! Thank you to everyone who joined us and/or supported us.
Stay tuned as we plan for our 2024 New Jersey Shore Walk & Roll to Cure FSHD
Learn more about the Walk & Roll to Cure FSHD HERE!