Welcome to the New York/New Jersey-area Chapter!
Thank you for visiting the New York/New Jersey-area Chapter of the FSHD Society which serves all the areas in-and-around New York, including New Jersey. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Mark your calendar for Sunday September 24th, 2023 - for our First Annual New Jersey Shore Walk & Roll to Cure FSHD in Seaside Heights, NJ. REGISTER TODAY!
Learn more about the Walk & Roll to Cure FSHD HERE!