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New York City Chapter

Home / Connect / Local Chapters / New York City Chapter
new york city chapter

Welcome to the New York/New Jersey-area Chapter!

Thank you for visiting the New York/New Jersey-area Chapter of the FSHD Society which serves all the areas in-and-around New York, including New Jersey. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

The 2023 New Jersey Shore Walk & Roll to Cure FSHD

Mark your calendar for Sunday September 24th, 2023 - for our First Annual New Jersey Shore Walk & Roll to Cure FSHD in Seaside Heights, NJ. REGISTER TODAY!

Learn more about the Walk & Roll to Cure FSHD HERE!

 

To contact us directly, please email: NYCChapter@fshdsociety.org.

Don’t forget to follow us on FACEBOOK

Please join us! Simply fill out the form in the sidebar to become a member of the NYC chapter

Upcoming Events

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September 2023

Tue 26
Featured Featured Sep 26 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Sep 28 @ 8:00 am

FSHD Radio: Hot off the Press – Mel Hayes of Fulcrum Therapeutics on the REACH Trial

Facebook and YouTube

Thursday, September 28th  14:00 PM CET | 13:00 PM UK | 8:00 AM ET | 7:00 AM CT | 6:00 AM MT | 5:00 AM PT Earlier this month, Fulcrum... Read More »

Thu 28
Featured Featured Sep 28 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Why exercise?

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join us for our second session of... Read More »

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Dave Rubin

DAVID RUBIN

Chapter Director

I am David Rubin.  I am excited to re-ignite and lead the NY Chapter of FSHD Society.

I was diagnosed with FSHD 16 years ago at the age of 49 and have experienced slow but consistent muscle loss.

I am recently retired after spending 40 years in business advisory leadership roles.  Today I spend my time as a board member of FSHD Society, pursing a variety of entrepreneurial opportunities and being a grandfather.

Stay Informed on Chapter Activities

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

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General Mailing Address:

75 North Main Street, Suite 1073
Randolph, MA 02368 U.S.A.

Mail Donations to:

FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

(781) 301-6060

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