new york city chapter

Welcome to the New York City-area Chapter!

Thank you for visiting the New York City-area Chapter of the FSHD Society which serves all the areas in-and-around New York, including New Jersey. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Magic for a Cure: Huge Success!

Magic for a Cure

A slideshow from our wonderful "Magic for a Cure" event in November 2021 - courtesy Jennifer Nilsen Photography, featuring the talented John David Stessel Magician!

https://jennifer-nilsen-photography-48533.smartslides.com...

 

Stay tuned as we plan our Magic for a Cure event, coming the Fall of 2022!

 

To contact us directly, please email: NYCChapter@fshdsociety.org.

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Please join us! Simply fill out the form in the sidebar to become a member of the NYC chapter

Upcoming Events

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, March 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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Dave Rubin

DAVID RUBIN

Chapter Director

I am David Rubin.  I am excited to re-ignite and lead the NY Chapter of FSHD Society.

I was diagnosed with FSHD 16 years ago at the age of 49 and have experienced slow but consistent muscle loss.

I am recently retired after spending 40 years in business advisory leadership roles.  Today I spend my time as a board member of FSHD Society, pursing a variety of entrepreneurial opportunities and being a grandfather.

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Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

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