Welcome to the New York City Chapter!
Thank you for visiting the New York City Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email: NYCChapter@fshdsociety.org.
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Please join us! Simply fill out the form in the sidebar to become a member of the NYC chapter
Upcoming Events
Apr
27
Caregiver / Sharegiver Hour
8:00 - 9:00 PM ET This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Please respect our rules restricting this meeting to caregivers (or "sharegivers," as Isaac Prilleltensky has proposed, because providing care to loved ones is a two-way street). Because we don't want to publicly post the Zoom meeting link (to…
Find out more »May
10
Wellness Hour (Virtual Meeting)
This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…
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FSHD Society Radio with Lori Brant, personal coach
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Lori Brant Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts, or post questions and comments in the YouTube comments section. You can also watch the recording on Facebook or access the podcast on most any streaming channel. "Our guest this month is Lori Brant, a life coach who lives with FSH muscular dystrophy.…
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PETER GANGEMI
Chapter Director
My name is Peter Gangemi and I am honored to be the New York Chapter Director of the FSHD Society. I am 43 years old and was diagnosed with FSH in 2013 with a mild to moderate form. I have been around FSH my whole life as my father was diagnosed in 1980 when I was just 2 years old. Living with FSH has posed its challenges, but it has also helped shape me into the man I am today. I feel many of the blessings I have are due in part to the fact that FSH has taught me not to give up and to be strong even in life’s toughest moments.
I live in New Jersey with my lovely wife Francesca and our 2 cats Chauncey and Nightmare and our Boxer dog Rocky (He’s my boy!).
I enjoy watching sports (I am a huge Mets fan), playing guitar, cooking, reading, watching movies, and learning anything new. I have been working in the IT Field for 22 years and have achieved my bachelor’s degree in computer science from St. John’s University and my master’s degree in IT Management from Southern New Hampshire University.
I am proud to be a part of a wonderful Team and look forward to contributing to the growth of our community.
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