Welcome to the New York City Chapter!
Thank you for visiting the New York City Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email: NYCChapter@fshdsociety.org.
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Please join us! Simply fill out the form in the sidebar to become a member of the NYC chapter
Upcoming Events › New York City Chapter Events
Saturday November 21st, 12p-1p ET Join Zoom Meeting from your computer or tablet: https://us02web.zoom.us/j/89829813766?pwd=MTNkYlFIdHgxSGRUVnpENHJFZkhpdz09 Meeting ID: 898 2981 3766, Passcode: FSHD Or by phone 646-558-8656, Meeting ID: 898 2981 3766 We are long overdue for a gathering! While COVID-19 may keep us from getting together in person, we can still gather virtually. Join your fellow NYC and surrounding area FSHD-ers for a virtual meeting on November 21st at 12 noon ET. A time to reconnect, meet new members, and…Find out more »
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…Find out more »