Welcome to the New York City-area Chapter!
Thank you for visiting the New York City-area Chapter of the FSHD Society which serves all the areas in-and-around New York, including New Jersey. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Volunteer Spotlight: Peter Gangemi
Hear from your local Chapter Director, Peter Gangemi, about his journey with FSHD, how he got involved with the FSHD Society, and his advice to the newly diagnosed.