Welcome to the New York City-area Chapter!
Thank you for visiting the New York City-area Chapter of the FSHD Society which serves all the areas in-and-around New York, including New Jersey. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Magic for a Cure: Huge Success!
A slideshow from our wonderful "Magic for a Cure" event in November 2021 - courtesy Jennifer Nilsen Photography, featuring the talented John David Stessel Magician!
Stay tuned as we plan our Magic for a Cure event, coming the Fall of 2022!