Welcome to the New York City Chapter!

Thank you for visiting the New York City Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To contact us directly, please email: NYCChapter@fshdsociety.org.

Don’t forget to follow us on FACEBOOK

Please join us! Simply fill out the form in the sidebar to become a member of the NYC chapter

Upcoming Events

Upcoming Events › New York City Chapter Events

Jun

3

FSHD Society Radio with Mitch and Bill

Jun 3 @ 8:00 pm - 9:00 pm

Facebook Live, United States + Google Map

Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Tim and his guests would…

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FSHD Radio Sequester Camp

Jun 10 @ 6:00 pm - 7:00 pm

|Recurring Event (See all)

Facebook Live United States

7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…

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