Welcome to the North Carolina Chapter!

Thank you for visiting the North Carolina Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

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To reach us, please email:
[email protected]

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Want to make sure you never miss information about activities with the chapter? Become a member by filling out the form on the right.

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Meredith Huml

MEREDITH HUML

Chapter Director

We need a cure, and I am passionate about being a part of finding it in any way I can.

You can reach me by email: [email protected].

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

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