Welcome to the North Carolina Chapter!

Thank you for visiting the North Carolina Chapter of the FSHD Society which officially launched in October 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To reach us, please email:
NCChapter@fshdsociety.org

Don’t forget to follow us on FACEBOOK

Want to make sure you never miss information about activities with the chapter? Become a member by filling out the form on the right.

Upcoming Events

Upcoming Events › North Carolina Chapter Events

Jun

3

FSHD Society Radio with Mitch and Bill

Jun 3 @ 8:00 pm - 9:00 pm

Facebook Live, United States + Google Map

Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Tim and his guests would…

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FSHD Radio Sequester Camp

Jun 10 @ 6:00 pm - 7:00 pm

|Recurring Event (See all)

Facebook Live United States

7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…

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