Welcome to the North Carolina Chapter!

Thank you for visiting the North Carolina Chapter of the FSHD Society which officially launched in October 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

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Join Us for Our Next Chapter Meeting on Saturday, November 9th

This next chapter meeting will be discussing Health Insurance, the North Carolina Chapter’s 2019 Walk & Roll to Cure FSHD, next year’s agenda for the chapter, Mental Health resources, and a discussion on mental health with FSHD.

Please RSVP HERE!

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Walk & Roll

Our second annual Walk & Roll to Cure FSHD took place on Saturday, Oct. 5th, 2019 at North Carolina State University – Talley Student Union! A million THANK YOU’s to everyone who was involved with this fabulous event!

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To reach us, please email:
NCChapter@fshdsociety.org

Don’t forget to follow us on FACEBOOK

Want to make sure you never miss information about activities with the chapter? Become a member by filling out the form on the right.

Upcoming Events

Upcoming Events › North Carolina Chapter Events

Dec
7

Webinar: The ABC’s of clinical trials with Dr. Rabi Tawil

Dec 7 @ 2:00 pm - 3:00 pm

Zoom web conference, United States

This year, Acceleron’s ACE-083 drug is expected to complete its phase 2b trial, and Fulcrum is conducting its trial of Dr. Rabi Tawil the first drug intended to repress DUX4, the gene implicated in causing FSHD. This is a good time to brush up on the vocabulary of clinical trials and the FDA approval process, and learn how to navigate the path to volunteering for trials. Your guide is Rabi Tawil, MD, who is principal investigator for several clinical trials…

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