Welcome to the North Carolina Chapter!
Thank you for visiting the North Carolina Chapter of the FSHD Society which officially launched in October 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Walk & Roll
Our second annual Walk & Roll to Cure FSHD took place on Saturday, Oct. 5th, 2019 at North Carolina State University – Talley Student Union! A million THANK YOU’s to everyone who was involved with this fabulous event!
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To reach us, please email:
NCChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Want to make sure you never miss information about activities with the chapter? Become a member by filling out the form on the right.
Upcoming Events
Apr
1
FSHD Society Radio with guest Carden Wyckoff
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Call-in number: (262) 422-6369 Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's…
Find out more »FSHD Radio Sequester Camp
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…
Find out more »FSHD Radio Sequester Camp
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…
Find out more »
MEREDITH HUML
Chapter Director
We need a cure, and I am passionate about being a part of finding it in any way I can.
You can reach me by email: NCChapter@fshdsociety.org.
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