Welcome to the North Carolina Chapter!
Thank you for visiting the North Carolina Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Make plans now to Walk & Roll with us in 2022!
Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in North Carolina, we are making plans to build on the success of last year's walk and hope you will join us!
Want to help plan or organize the North Carolina Walk & Roll to Cure FSHD? I'd love to have you! Let me know at NCChapter@FSHDSociety.org
Want to know more about the Walk & Roll? Learn More