Welcome to the North Carolina Chapter!

Thank you for visiting the North Carolina Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

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2022 Walk & Roll Graphic for Chapter Pages

Make plans now to Walk & Roll with us in 2022!

Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in North Carolina, we are making plans to build on the success of last year's walk and hope you will join us!

Want to help plan or organize the North Carolina Walk & Roll to Cure FSHD? I'd love to have you! Let me know at NCChapter@FSHDSociety.org

Want to know more about the Walk & Roll? Learn More

To reach us, please email:
NCChapter@fshdsociety.org

Don’t forget to follow us on FACEBOOK

 

Want to make sure you never miss information about activities with the chapter? Become a member by filling out the form on the right.

Upcoming Events

Today

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Women on Wellness: On Mattering

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we'll be talking about "mattering," feeling valued as a... Read More »

Featured Featured

Wellness Hour: Holiday revels

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, you're invited to come dressed in Zoom-worthy holiday apparel, with favorite seasonal libations... Read More »

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Meredith Huml

MEREDITH HUML

Chapter Director

We need a cure, and I am passionate about being a part of finding it in any way I can.

You can reach me by email: NCChapter@fshdsociety.org.

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

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