Welcome to the North Carolina Chapter!
Thank you for visiting the North Carolina Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
For general chapter questions or to inquire about volunteer opportunities, please email NCChapter@fshdsociety.org or Jenny Gast, Eastern Regional Director, at jenny.gast@fshdsociety.org.
For local questions and inquiries, contact Michael King, Community Volunteer: mak5usa@gmail.com
Don’t forget to follow us on FACEBOOK
Want to make sure you never miss information about activities with the chapter? Become a member by filling out the form on the right.
2024 North Carolina Walk & Roll to Cure FSHD
Saturday, September 21, 2024
Registration starts at 10:00am and the Walk starts at 10:30am
Goat Island Park - Large Shelter, 141 8th Ave, Cramerton, NC 28032
Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media and via email, and invite others to join you in getting us closer to a cure!
The Walk & Roll to Cure FSHD is the FSHD Society’s largest, annual fundraiser. It is also the ONLY signature event in North America dedicated to raising funds for FSHD research, cures, and community support.
Upcoming Events
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our... Read More »
Michael King, Chapter Director
Hi! I am Michael King from Charlotte, North Carolina. After I was diagnosed with FSHD in early 2024, I immediately reached out to the amazing team at the FSHD Society and will forever be grateful for their help navigating this disease. I have found that connecting with fellow patients and being active in the FSHD community has been the best therapy for me as I face the challenges of this disease. I hope that by serving in the role of Chapter Director that I can positively impact all FSHD patients, their families, and friends. I feel blessed to have this opportunity and am excited to get to know all of you.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know if you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
