Welcome to the North Carolina Chapter!
Thank you for visiting the North Carolina Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
North Carolina Walk & Roll to Cure FSHD - Fall 2021!
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Past Events › All Chapters
North Carolina Virtual Chapter Meeting Saturday, April 3, 2021 2:00pm-3:00pm Eastern Time JOIN THE ZOOM MEETING HERE It’s been a while, and we miss seeing everyone! Please join us for the next virtual gathering of the North Carolina chapter on Saturday, April 3rd. We are looking forward to catching up with our friends and neighbors, and looking ahead to all that we have to be excited for in the upcoming year. I hope to “see” you there! Meredith Huml, North Carolina…Find out more »
This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. This month, we welcome Ray Jordan and…Find out more »
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT LISTEN HERE Note: our original program featuring the FSHD Society's Jamshid Arjomand, PhD, chief science officer, has been postponed until later this year. Instead, we are delighted to welcome Rabbi Haviva Ner-David, a long-time member of the FSHD Society whose first novel, Hope Valley, is being published this month. Haviva drew on her experience living with FSHD to create two compelling Israeli women, one Jewish…Find out more »