Welcome to the Ontario Chapter!
Thank you for visiting the Ontario, Canada Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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The Ontario Walk & Roll to Cure FSHD - coming Fall 2021!
Contact our Chapter Director, Carrie Wilkinson directly, via email: OntarioChapter@fshdsociety.org, or by phone (905) 904-3721
Follow our local chapter on Facebook for news and notes about regional happenings. And please become an official member of our chapter to ensure you never miss a thing! Simply fill out the form in the right sidebar.
Canadian Networking Resource: Anne Harland, Canadian FSHD Network - harland.milne@sympatico.ca, (905) 843-1403
Upcoming Events
Apr
27
Caregiver / Sharegiver Hour
8:00 - 9:00 PM ET This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Please respect our rules restricting this meeting to caregivers (or "sharegivers," as Isaac Prilleltensky has proposed, because providing care to loved ones is a two-way street). Because we don't want to publicly post the Zoom meeting link (to…
Find out more »May
1
Ontario Virtual Chapter Meeting
Ontario Chapter Meeting – Saturday May 1st, 11:00am ET. We will have a guest speaker, TBD. Stay tuned for more information. Zoom Information: https://us02web.zoom.us/j/85980460842?pwd=RnJzam5WYlY1VUt6SFlscXlPcWEwQT09 Meeting ID: 859 8046 0842, Passcode: 685642 Or by phone: 646-558-8656, Meeting ID: 859 8046 0842 Hope to "see" you there! ~Carrie Wilkinson, Ontario Chapter Director
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FSHD Society Radio with Lori Brant, personal coach
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Lori Brant Join host Tim Hollenback on YouTube on the 2nd Tuesday of every month. Call Tim at 414-375-2561 to share your thoughts, or post questions and comments in the YouTube comments section. You can also watch the recording on Facebook or access the podcast on most any streaming channel. "Our guest this month is Lori Brant, a life coach who lives with FSH muscular dystrophy.…
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CARRIE WILKINSON
Chapter Director
A bit about me. I live on a hobby farm north of Toronto with my husband, John, and our two children. Our daughter was diagnosed with FSHD at the age of six and John was diagnosed shortly after.
Professionally, I work as an Occupational Therapist in neuro rehabilitation. I pour my heart and soul into helping my patients achieve their goals.
I am equally dedicated to build a collective voice for FSHD in our province. Although Ontario encompasses a large geographical area, I know we will come together to support one another, share resources, and actively engage in finding a cure for FSHD.
Stay Informed on Local Activities
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