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Welcome to the Ontario Chapter!

Thank you for visiting the Ontario, Canada Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

The FSHD Canada Foundation has partnered with the FSHD Society to both support and grow the FSHD Communities across Canada - with the combined goal to deliver treatments and a cure for FSH Muscular Dystrophy.

Contact our Chapter Director, Carrie Wilkinson directly, via email: OntarioChapter@fshdsociety.org, or by phone (905) 904-3721

Follow our local chapter on Facebook for news and notes about regional happenings. And please become an official member of our chapter to ensure you never miss a thing! Simply click 'sign up today' in the right sidebar.

 

Canadian Networking Resource: Anne Harland, Canadian FSHD Network - harland.milne@sympatico.ca, (905) 843-1403

Thank you for supporting the 2022 Ontario Walk & Roll!

A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Saturday, Sept. 17th in Mississauga, Ontario! We are thrilled to announce that we have raised nearly $40,000 CDN for the FSHD Canada Foundation!

Mark your calendar for September of 2023 - as we plan for our next event!

Want to know more about the Walk & Roll? Learn More

Upcoming Events

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FSHD Radio: Hot off the Press

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Thursday, March 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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Carrie Wilkinson

CARRIE WILKINSON

Chapter Director

A bit about me. I live on a hobby farm north of Toronto with my husband, John, and our two children. Our daughter was diagnosed with FSHD at the age of six and John was diagnosed shortly after.

Professionally, I work as an Occupational Therapist in neuro rehabilitation. I pour my heart and soul into helping my patients achieve their goals.

I am equally dedicated to build a collective voice for FSHD in our province. Although Ontario encompasses a large geographical area, I know we will come together to support one another, share resources, and actively engage in finding a cure for FSHD.

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

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