Lighting the Way to a Cure

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Welcome to the Sacramento Chapter!

Thank you for visiting the Sacramento Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

2021 California Walk & Roll a Tremendous Success!

On Saturday, September 18, the Bay Area, San Diego, Los Angeles, and Sacramento chapters came together from across the state for one, amazing day of walking & rolling to Cure FSHD! Walkers and rollers stepped out to say "FSHD Ends with Me!" and our local event raised more than $90,000 towards the campaign total, through participants and teams from across the state.

Stay tuned as we begin the planning for our 2022 Walk & Roll to Cure FSHD!

To contact us directly, please email:
SacramentoChapter@fshdsociety.org

Don’t forget to follow us on FACEBOOK

 

Would you like to get involved? Simply fill out the form in the sidebar. We are looking for a new chapter leader or leadership committee. Please consider joining us!

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Looking for an FSHD Chapter Director in Sacramento

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Chapter Director

We are looking for leadership for this important chapter! We welcome all interested parties to contact us and inquire about getting involved as a member of the chapter committee or to be considered for the important role of Chapter Director.

Contact Beth Johnston at Beth.Johnston@FSHDSociety.org

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of your local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

Sign Up Today!