Welcome to the Sacramento Chapter!
Thank you for visiting the Sacramento Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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To contact us directly, please email:
SacramentoChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Would you like to get involved? Simply fill out the form in the sidebar. We are looking for a new chapter leader or leadership committee. Please consider joining us!
Upcoming Events
Aug
20
Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »Dec
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FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…
Find out more »
Can You Envision Your Name Here?
Chapter Director
We are looking for leadership for this important chapter! We welcome all interested parties to contact us and inquire about getting involved as a member of the chapter committee or to be considered for the important role of Chapter Director.
Contact Beth Johnston at Beth.Johnston@FSHDSociety.org
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!
