Welcome to the Sacramento Chapter!
Thank you for visiting the Sacramento Chapter of the FSHD Society which officially launched in September 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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To contact us directly, please email:
SacramentoChapter@fshdsociety.org
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Would you like to get involved? Simply fill out the form in the sidebar.
Upcoming Events
Apr
21
Voice of the Patient Forum for Drug Development
This meeting is the FSHD Community’s forum to present testimony by patients and family caregivers and educate the FDA on how FSHD has impacted your life or the life of your loved ones. Your input will result in a Voice of the Patient Report that will be submitted to the FDA’s Division of Neurology Products, Office of New Drugs, for inclusion in the framework used to evaluate future FSHD therapies. Your views carry great weight with the agency when it considers whether…
Find out more »Jun
27
2020 FSHD Connect
The 2020 FSHD Connect. hosted by the FSHD Society, is the largest biennial educational and networking gathering of FSHD patients and families, researchers, and clinicians.
Find out more »
KAREN DUNKERLY
Chapter Director
I live in Carmichael, California with my amazing husband Patrick and our little boy Griffin. We love to spend time with family, explore our area, and grow within the community. I am passionate about this chapter because I firmly believe that strength and confidence comes with meeting other people that have the same struggle as you do and finding ways to help each other. Strength comes in numbers!
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