Welcome to the San Diego Chapter!
Thank you for visiting the San Diego Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Mark Your Calendars for Our 2020 Walk & Roll!
There will be plenty more details to come! Be sure to keep checking back for updates.
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To contact us directly, please email:
SanDiegoChapter@fshsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the San Diego chapter.
Upcoming Events
Feb
22
San Diego Chapter Meeting
Please join us on February 22, 2020 for a tour and meeting with Avidity Biosciences. 10:00am - 2:00pm A local biotech company, Avidity Biosciences, Inc. has been diligently working on FSHD and are extremely enthusiastic to meet us and move forward with research. They would like to get to know us better; to meet the people and lives behind the disease and put a more intimate face on their research. They have invited us to make a presentation to their…
Find out more »Mar
4
FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »Apr
1
FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »
AMY BEKIER
Chapter Director
Amy Bekier obtained an M.S. in Education from Queens College, NY and had a career as an insurance agent and Chartered Life Underwriter. When FSH muscular dystrophy began affecting her and her family her motto became, “I can no longer sit and cope but must get active and hope”. After relocating to San Diego she joined the FSHD Society as a national Board member and Chapter Leader.
Amy is a passionate award winning artist who enjoys painting with soft pastels and oil. When she could no longer raise her right arm to paint, she taught herself to paint left handed. Until recently Amy played modified recreational golf and continues to be a member of the Bernardo Heights Country Club.
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