Welcome to the San Diego Chapter!
Thank you for visiting the San Diego Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Mark Your Calendars for Our 2020 Walk & Roll!
There will be plenty more details to come! Be sure to keep checking back for updates.
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To contact us directly, please email:
SanDiegoChapter@fshsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the San Diego chapter.
Upcoming Events
Dec
18
FSHD Radio – Meet Meredith Huml
Meredith Huml Join radio host Tim Hollenback via Facebook Live on Wednesday, December 18, at 9:00 PM ET | 8:00 PM Central. His guest this month is Meredith Huml, director of the North Carolina chapter. Diagnosed at age 12 with a "disease she had never heard of," Meredith faced the wrenching loss of her beloved dancing. Her younger brother Jonathan as diagnosed with FSHD as well, with symptoms that progressed even faster than hers. After years of struggling, she has not…
Find out more »Jul
11
San Diego Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 San Diego Walk & Roll to Cure FSHD has been scheduled! We hope to see you on Saturday, July 11th, 2020 at Harbor Island Park! Please reach out to the Chapter Director, Amy Bekier, with any questions! She can be found at: SanDiegoChapter@FSHSociety.org. We look forward to seeing you on July 11th!
Find out more »
AMY BEKIER
Chapter Director
Amy Bekier obtained an M.S. in Education from Queens College, NY and had a career as an insurance agent and Chartered Life Underwriter. When FSH muscular dystrophy began affecting her and her family her motto became, “I can no longer sit and cope but must get active and hope”. After relocating to San Diego she joined the FSHD Society as a national Board member and Chapter Leader.
Amy is a passionate award winning artist who enjoys painting with soft pastels and oil. When she could no longer raise her right arm to paint, she taught herself to paint left handed. Until recently Amy played modified recreational golf and continues to be a member of the Bernardo Heights Country Club.
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