Welcome to the San Diego Chapter!
Thank you for visiting the San Diego Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
San Diego Walk & Roll a Tremendous Success!
Nothing could diminish our commitment to our FSHD families! Determined to get active and work for progress, the San Diego Chapter took their Walk & Roll (originally set for July 11 at a beautiful ocean-front park) to a virtual model.
Together, the mighty warriors of the San Diego Chapter led the way for the rest of the country, who walked on September 12th.
Together, we all celebrate more than $500,000 raised nationwide!!
Check out the Avidity Biosciences Virtual Walk & Roll video
To contact us directly, please email:
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Please join us! Simply fill out the form in the sidebar to become a member of the San Diego chapter.
Upcoming Events › San Diego Chapter Events
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. Our guest tonight is Eddie Barocas, an extraordinary champion for underdogs, who until recently served as Legal Director of the American Civil Liberties Union of New Jersey. You can read more about him on our blog. He will talk about his amazing life and how FSHD…Find out more »
Holiday Meeting! Sunday, December 6, 2020 4:00pm – 5:30pm Pacific Time Join Us Here You’re invited to the California Virtual Year-End Holiday Meeting!! Our Bay Area, San Diego, Los Angeles, and Sacramento Chapters of the FSHD Society are joining for our Holiday Meeting! This will be a chance to visit with friends – and meet new ones in our part of the world – before 2021, as we all could use time to connect and some time together. So please mark…Find out more »
3:00 pm ET | 2:00 pm CT | 1:00 pm MT | 12:00 pm PT. Last spring, shortly after states began locking down, Drs. Ghinwa Dumyati and Rabi Tawil from the University of Rochester presented a webinar on the COVID-19 pandemic. In the eight months since, researchers around the world have worked at a breakneck pace to understand how the virus spreads, how it affects patients, how to treat it, and ultimately how to prevent it through a vaccine. With…Find out more »