Welcome to the San Diego Chapter!
Thank you for visiting the San Diego Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
San Diego Walk & Roll a Tremendous Success!
Nothing could diminish our commitment to our FSHD families! Determined to get active and work for progress, the San Diego Chapter took their Walk & Roll (originally set for July 11 at a beautiful ocean-front park) to a virtual model.
Together, the mighty warriors of the San Diego Chapter led the way for the rest of the country, who will walk on September 12th.
We celebrate more than $27,500 raised to date by our chapter!!
Check out the Avidity Biosciences Virtual Walk & Roll video
To contact us directly, please email:
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Please join us! Simply fill out the form in the sidebar to become a member of the San Diego chapter.
Upcoming Events › San Diego Chapter Events
1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. Leann Lewis, MSGC Katy Eichinger, DPT This past spring, the FSHD Society and FSHD UK distributed a survey from the University of Rochester to assess how the neuromuscular patient community was responding to the social distancing policies imposed by the COVID-19 pandemic. We are so grateful to the hundreds of you who responded. The key investigators, Leann Lewis and Katy Eichinger, will present their findings…Find out more »
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…Find out more »