Welcome to the San Diego Chapter!
Thank you for visiting the San Diego Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Save the Date for Our 2020 Walk & Roll!
In recent weeks, all of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same.
The FSHD Society has been hard at work on a thoughtful and impactful response to the COVID-19 pandemic, bringing resources to our community to help us all through. We want to do the same on a local level. That is why we must continue to look to the future.
San Diego Walk & Roll to Cure FSHD
July 11, 2020
Harbor Island Park Drive
1875 Harbor Island Dr.
San Diego, CA 92101
Registration is now open; plenty more details to come! Be sure to keep checking back for updates. We'll see you there!
Want to help? Know someone that might be interested in supporting our efforts? Sponsorship resources available HERE
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To contact us directly, please email:
SanDiegoChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the San Diego chapter.
Upcoming Events
Apr
15
FSHD Radio Sequester Camp
CHANGE OF TIME TO: 7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome…
Find out more »FSHD Radio Sequester Camp
CHANGE OF TIME TO: 7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome…
Find out more »FSHD Radio Sequester Camp
CHANGE OF TIME TO: 7:00 PM ET | 6:00 PM CT | 5:00 PM MT | 4:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome…
Find out more »
AMY BEKIER
Chapter Director
Amy Bekier obtained an M.S. in Education from Queens College, NY and had a career as an insurance agent and Chartered Life Underwriter. When FSH muscular dystrophy began affecting her and her family her motto became, “I can no longer sit and cope but must get active and hope”. After relocating to San Diego she joined the FSHD Society as a national Board member and Chapter Leader.
Amy is a passionate award winning artist who enjoys painting with soft pastels and oil. When she could no longer raise her right arm to paint, she taught herself to paint left handed. Until recently Amy played modified recreational golf and continues to be a member of the Bernardo Heights Country Club.
Stay Informed on Local Activities
Are you not already a member of the Society? Sign-up via our new member form and get connected!