Welcome to the San Diego Chapter!
Thank you for visiting the San Diego Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
$10,000 San Diego Walk & Roll Matching Grant Challenge!
Our world has been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same. The FSHD Society has been hard at work, bringing resources to our community to help us all through.
We want to do the same on a local level. That is why we must continue to look to the future.
Virtual Walk & Roll - Countdown to July 11, 2020
Sequester-at-home restrictions and public safety guidelines have us all in our homes. While we certainly hope we can all safely come out into the community again by July 11, that remains uncertain. So we have decided to transition our San Diego Walk & Roll to Cure FSHD into a virtual team event.
A generous, anonymous donor is going to match up to $10,000 of every donation received now through July 11!
LEARN MORE and SIGN UP TODAY!
To donate to the San Diego Walk & Roll and receive the match for your gift, GO HERE
Let the world know you support the San Diego Virtual Walk & Roll. Download the appropriate sign, take a selfie, and share it on your favorite social media channel with #sandiegofshdcure
I Donated - I Donated
I Walk/Roll for... - I Walk-Roll for...
Know anyone who might be interested in supporting our efforts? Contact Amy or Callum at SanDiegoChapter@FSHDSociety.org today!
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To contact us directly, please email:
SanDiegoChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the San Diego chapter.
Upcoming Events
Aug
5
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »
Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »Sep
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »
AMY BEKIER
Chapter Director
Amy Bekier obtained an M.S. in Education from Queens College, NY and had a career as an insurance agent and Chartered Life Underwriter. When FSH muscular dystrophy began affecting her and her family her motto became, “I can no longer sit and cope but must get active and hope”. After relocating to San Diego she joined the FSHD Society as a national Board member and Chapter Leader.
Amy is a passionate award winning artist who enjoys painting with soft pastels and oil. When she could no longer raise her right arm to paint, she taught herself to paint left handed. Until recently Amy played modified recreational golf and continues to be a member of the Bernardo Heights Country Club.
Stay Informed on Local Activities
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