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Welcome to the South Carolina Chapter!
Thank you for visiting the South Carolina Chapter of the FSHD Society which officially launched in October 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Make plans now to Walk & Roll with us in 2022!
Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in South Carolina, we are making plans to build on the success of last year's walk and hope you will join us!
Want to help plan or organize the South Carolina Walk & Roll to Cure FSHD? I'd love to have you! Let me know at SouthCarolinaChapter@FSHDSociety.org
Want to know more about the Walk & Roll? Learn More
Volunteer Spotlight: Frank Hanley
Hear from your local chapter co-Director, Frank Hanley, on his journey with FSHD, how the South Carolina Chapter got started, and his advice for others living with FSHD.
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To contact us directly, please email: SouthCarolinaChapter@fshdsociety.org.
Please visit our Facebook page!
Please join us! Simply fill out the form in the sidebar to become a member of the South Carolina chapter.
Upcoming Events
Women on Wellness – Transitions in mobility
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is transitions in mobility. How do... Read More »
Wellness Hour – How do I talk to my family about FSHD?
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT FSHD is a familial condition, and yet family members can hold different attitudes about how... Read More »
FSHD Radio: Community Profiles with Dylan King
Facebook and YouTubeTuesday, July 12th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 2nd Tuesday of every month, join us for FSHD Radio:... Read More »
Sam Miller
Chapter Director
Sam lives in Travelers Rest SC with wife, Mindy and Cat, Luna. He was diagnosed in February 2020. He says: "My first sign was my bicep wasting away, and as a man that was hard. Coming to terms and acceptance of who you are now vs. who you once were physically is hard. But I have a beautiful wife and a great family/support structure behind me. I am not alone."
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
