Welcome to the South Carolina Chapter!

Thank you for visiting the South Carolina Chapter of the FSHD Society which officially launched in October 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Volunteer Spotlight: Frank Hanley

Hear from your local chapter co-Director, Frank Hanley, on his journey with FSHD, how the South Carolina Chapter got started, and his advice for others living with FSHD.

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To contact us directly, please email: SouthCarolinaChapter@fshdsociety.org.

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Please join us! Simply fill out the form in the sidebar to become a member of the South Carolina chapter.

Upcoming Events

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, March 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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Sam Miller

Sam Miller

Chapter Director

Sam lives in Travelers Rest SC with wife, Mindy and Cat, Luna.  He was diagnosed in February 2020. He says: "My first sign was my bicep wasting away, and as a man that was hard. Coming to terms and acceptance of who you are now vs. who you once were physically is hard. But I have a beautiful wife and a great family/support structure behind me. I am not alone."

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

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