Welcome to the South Carolina Chapter!
Thank you for visiting the South Carolina Chapter of the FSHD Society which officially launched in October 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
On Sunday, September 12, walkers and rollers stepped out to say "FSHD Ends with Me!" at the South Carolina Walk & Roll. Our local event raised over $8,000 towards the campaign total, through participants and teams from across the state.
Stay tuned as we begin the planning for our 2022 South Carolina Walk & Roll to Cure FSHD!
Volunteer Spotlight: Frank Hanley
Hear from your local chapter co-Director, Frank Hanley, on his journey with FSHD, how the South Carolina Chapter got started, and his advice for others living with FSHD.