Frank Hanley and wife Donna recently relocated to Myrtle Beach from Maryland.  Frank was active with the Greater Philadelphia Chapter, and offered to start-up the South Carolina Chapter when he found that a local group did not exist.  He feels strongly about the need to share treatment information, personal experiences, support and encouragement.

Frank suffers with FSHD and has been struggling with the disease all of his adult life.  He practices martial arts as his way of fighting back.   He is positive about the research being done in search of the cure.

Frank holds a Master’s Degree in Project Management.  He and Donna have four children (two boys and two girls), and a grandson.