Welcome to the South Carolina Chapter!

Thank you for visiting the South Carolina Chapter of the FSHD Society which officially launched in October 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

2022 Walk & Roll Graphic for Chapter Pages

Make plans now to Walk & Roll with us in 2022!

Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in South Carolina, we are making plans to build on the success of last year's walk and hope you will join us!

Want to help plan or organize the South Carolina Walk & Roll to Cure FSHD? I'd love to have you! Let me know at SouthCarolinaChapter@FSHDSociety.org

Want to know more about the Walk & Roll? Learn More

Volunteer Spotlight: Frank Hanley

Hear from your local chapter co-Director, Frank Hanley, on his journey with FSHD, how the South Carolina Chapter got started, and his advice for others living with FSHD.

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To contact us directly, please email: SouthCarolinaChapter@fshdsociety.org.

Please visit our Facebook page!

Please join us! Simply fill out the form in the sidebar to become a member of the South Carolina chapter.

Upcoming Events

Today

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Women on Wellness: On Mattering

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we'll be talking about "mattering," feeling valued as a... Read More »

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Wellness Hour: Holiday revels

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, you're invited to come dressed in Zoom-worthy holiday apparel, with favorite seasonal libations... Read More »

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Sam Miller

Sam Miller

Chapter Director

Sam lives in Travelers Rest SC with wife, Mindy and Cat, Luna.  He was diagnosed in February 2020. He says: "My first sign was my bicep wasting away, and as a man that was hard. Coming to terms and acceptance of who you are now vs. who you once were physically is hard. But I have a beautiful wife and a great family/support structure behind me. I am not alone."

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

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