Welcome to the Southwest Florida Chapter!
Thank you for visiting the Southwest Florida Chapter of the FSHD Society. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Thank you for supporting the Walk & Roll in 2022!
A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Sunday, Sept. 11th in Baker Park in Naples, Florida! We are thrilled to announce that we achieved our goal of raising $60,000!!! We thank you for your support.
Want to know more about the Walk & Roll? Learn More
Volunteer Spotlight: Heloise Hoffmann
Hear from your local Chapter Director, Heloise Hoffmann, about her journey with FSHD, how she got involved with the FSHD Society, and why she's hopeful for the future.