Welcome to the Southwest Florida Chapter!
Thank you for visiting the Southwest Florida Chapter of the FSHD Society. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
We are actively seeking someone to lead this very important chapter. If you are interested in this role or have general chapter questions, please email SWFloridaChapter@fshsociety.org or Jenny Gast, Eastern Regional Director, at jenny.gast@fshdsociety.org
Volunteer Spotlight: Heloise Hoffmann
Hear from Heloise Hoffmann, about her journey with FSHD, how she got involved with the FSHD Society, and why she's hopeful for the future.
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To contact us directly, please email: SWFloridaChapter@fshsociety.org
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Please join us! Simply fill out the form in the sidebar to become a member of the Southwest Florida chapter