Welcome to the Western PA Chapter!
Thank you for visiting the Western Pennsylvania Chapter of the FSHD Society which officially launched in June 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
We made headlines!
Our Chapter, and our upcoming Drum & Roll event, were featured in a recent article on Trib Live! Hear from our members, find out what we're working on, and why it's important to us. Click below to read more!
Save the Date for the 2023 Drum & Roll to Cure FSHD!
Mark your calendars: We will be back this November to Drum, Roll, and advocate for a cure for FSHD on Sunday, November 5th, 2023! This year, our event will be moving to the National Aviary in Pittsburgh, but will feature the same amazing band, adaptive dance instruction, and of course a Pittsburgh cookie table. If you haven't experienced this incredible event yet, don't miss another! Get started by registering today, and we can't wait to see you there!
A very special thanks to our friends at Trib Total Media, who are once again our platinum sponsors. We couldn't do it without you!
Volunteer Spotlight: Mark Christman
Hear from your local Chapter Director, Mark Christman, as he shares his FSHD journey, what his involvement has meant to him, and his advice to the newly diagnosed.
To contact us directly, please email:
WesternPAChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the Western PA chapter.
Upcoming Events
Women on Wellness – Estrogen & FSHD
Zoom Virtual Meeting , United StatesFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our guest this month is Loralei Thornburg, MD, professor of... Read More »
Wellness Hour – Chair dance party
Zoom Virtual Meeting , United StatesDancing with differences: A Moving Celebration of the Season 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Join us for a joyous and... Read More »
FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, December 12th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »