Welcome to the Western PA Chapter!
Thank you for visiting the Western Pennsylvania Chapter of the FSHD Society which officially launched in June 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Mark your calendars: We will be back this November to Drum, Roll, and advocate for a cure for FSHD on Sunday, November 5th, 2023! This year, our event will be moving to the National Aviary in Pittsburgh, but will feature the same amazing band, adaptive dance instruction, and of course a Pittsburgh cookie table. If you haven't experienced this incredible event yet, don't miss another! Get started by registering today, and we can't wait to see you there!
A very special thanks to our friends at Trib Total Media, who are once again our platinum sponsors. We couldn't do it without you!
Volunteer Spotlight: Mark Christman
Hear from your local Chapter Director, Mark Christman, as he shares his FSHD journey, what his involvement has meant to him, and his advice to the newly diagnosed.