Welcome to the Western PA Chapter!
Thank you for visiting the Western Pennsylvania Chapter of the FSHD Society which officially launched in June 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Mark your calendars: The first-ever Drum & Roll will take place on Saturday, November 6th, 2021! We invite you to join us in raising funds, awareness, and celebrating coming together as a community again this fall. In this unique event, participants will learn and enjoy a mobility-device-friendly West African dance. There is so much more to this event than meets the eye, and we can't wait to see you there! Click the icon below to learn more!
Volunteer Spotlight: Mark Christman
Hear from your local Chapter Director, Mark Christman, as he shares his FSHD journey, what his involvement has meant to him, and his advice to the newly diagnosed.