Welcome to the Western PA Chapter!
Thank you for visiting the Western Pennsylvania Chapter of the FSHD Society which officially launched in June 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Want to know more about us? Check out this recently published article about Chapter Director Mark Christman, and his journey living with FSHD (Click HERE!).
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To contact us directly, please email:
WesternPAChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the Western PA chapter:
Upcoming Events
