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Upcoming Events › Western Pennsylvania Chapter Events
Mindfulness Workshop with Jennifer Egert, Ph.D. We welcome you to join us for a remote Mindfulness Workshop with Jennifer Egert, Ph.D., a clinical psychologist in private practice in New York City, followed by a peer support session sharing personal experiences. Learn more about Jennifer here! We hope to see you there! ~ Mark Christman, Western PA Chapter Director. WesternPAChapter@FSHDSociety.org We strongly encourage everyone to physically join us for this meeting, but if that is not an option for you, we…Find out more »
This year, Acceleron’s ACE-083 drug is expected to complete its phase 2b trial, and Fulcrum is conducting its trial of Dr. Rabi Tawil the first drug intended to repress DUX4, the gene implicated in causing FSHD. This is a good time to brush up on the vocabulary of clinical trials and the FDA approval process, and learn how to navigate the path to volunteering for trials. Your guide is Rabi Tawil, MD, who is principal investigator for several clinical trials…Find out more »