Welcome to the Wisconsin Chapter!
Thank you for visiting the Wisconsin Chapter of the FSHD Society!
We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
2021 Walk & Roll a Tremendous Success!
On Saturday, September 18, walkers and rollers from across North America stepped out to say "FSHD Ends with Me!" at the annual Walk & Roll. Our local chapter chipping in nearly $1,500 towards the campaign total and we hope even more of you will join us next year!
Stay tuned as we begin the planning for our 2022 Wisconsin Walk & Roll to Cure FSHD!
To contact Tim directly, please email: WisconsinChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Upcoming Events
Sharegiver Hour – Mindfulness meditation
8:00 - 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Jennifer Egert, PhD Join psychologist and mindfulness instructor Jennifer Egert, PhD, to learn about mindfulness meditation... Read More »
FSHD Univeristy – Physical therapy for shoulder dyskinesia
1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Presented by Jos IJspeert, MSc, Radboud University Medical Center Jos IJspeert, Radboud University Medical Center Shoulder... Read More »
FSHD Radio: Hot off the Press with Jamshid Arjomand, PhD
Facebook and YouTubeThursday, January 27th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 4th Thursday of every month, join us for FSHD Radio:... Read More »
TIM HOLLENBACK
Chapter Director
Before my diagnosis in 2016, I never heard of FSHD. The day of the diagnosis I was shocked and scared.
I looked for support. I found it with my wife, Angie and our two sons Carter and Chase. I also found it in the FSHD Society.
I immediately volunteered to host a podcast and helped create a great global presence for others needing support.
I am excited to be the director of the Wisconsin Chapter group and help others locally. This Wisconsin chapter will rise as one to support, educate, and of course raise funds to cure this disease.
Stay Informed on Chapter Activities!
Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.
When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.
If you want to know more about this and why it is so important, learn more HERE
Your personal information will be kept strictly confidential.
