Welcome to the Wisconsin Chapter!
Thank you for visiting the Wisconsin Chapter of the FSHD Society!
We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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Wisconsin Walk & Roll to Cure FSHD - Fall 2021!
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To contact Tim directly, please email: WisconsinChapter@fshdsociety.org
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Would you like to get involved? Simply fill out the form in the sidebar.
Upcoming Events
Mar
8
Wellness Hour (Virtual Meeting)
This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. At last month's meeting, we had a…
Find out more »FSHD Society Radio with Carlos Romero
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our guest this evening is Carlos Romero, who has amazed us over the past several years by becoming a national paraclimbing champion and being featured in People magazine for losing 225 pounds following his FSHD diagnosis in 2012. He recently started his own podcast, Crappy Comics, a "podcast about comedy and courage." We can't wait to catch up with him! Join host Tim Hollenback on…
Find out more »Apr
12
Wellness Hour (Virtual Meeting)
This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. If you are interested, please register by…
Find out more »
TIM HOLLENBACK
Chapter Director
Before my diagnosis in 2016, I never heard of FSHD. The day of the diagnosis I was shocked and scared.
I looked for support. I found it with my wife, Angie and our two sons Carter and Chase. I also found it in the FSHD Society.
I immediately volunteered to host a podcast and helped create a great global presence for others needing support.
I am excited to be the director of the Wisconsin Chapter group and help others locally. This Wisconsin chapter will rise as one to support, educate, and of course raise funds to cure this disease.
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