Lighting the Way to a Cure

Wisconsin

Welcome to the Wisconsin Chapter!

Thank you for visiting the Wisconsin Chapter of the FSHD Society!

We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

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International Virtual Walk & Roll to Cure FSHD - September 18, 2021!

Register today to join in the fun! Please join us in celebrating our progress and continuing to make strides in our quest for treatments for FSHD. Join an international virtual community and walk, roll, and fundraise for the cause this Fall! Please visit the National Walk & Roll to Cure FSHD page for more information about events around the country, and all the latest updates!

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To contact Tim directly, please email: WisconsinChapter@fshdsociety.org

Don’t forget to follow us on FACEBOOK

 

Would you like to get involved? Simply fill out the form in the sidebar.

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Tim Hollenbeck, FSHD Radio show host

TIM HOLLENBACK

Chapter Director

Before my diagnosis in 2016, I never heard of FSHD. The day of the diagnosis I was shocked and scared.

I looked for support. I found it with my wife, Angie and our two sons Carter and Chase. I also found it in the FSHD Society.

I immediately volunteered to host a podcast and helped create a great global presence for others needing support.

I am excited to be the director of the Wisconsin Chapter group and help others locally. This Wisconsin chapter will rise as one to support, educate, and of course raise funds to cure this disease.

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