You are not alone. Our chapters are here for you.
We are the FSHD Society, a sprawling community of individuals with FSHD, their families, friends, and advocates. We include researchers and medical practitioners who have dedicated themselves to understanding and treating the condition. We are all about connecting people because we are stronger working together.
There are many ways for you to meet others with FSHD:
-
- Join a local chapter
- Join an online community
- Contact us; we’ll connect you
Read about the many remarkable people who are living their fullest with FSHD.