English
English
العربية
Español de México
Français du Canada
简体中文
Events
Blog
BetterLife
Living with FSHD
Understanding FSHD
Diagnosis
Early-onset FSHD
Genetic Testing
Symptoms
FSHD University
Physical Health
Wellness
Glossary of Scientific Terms
Patient Library
Genetic Cause
Managing FSHD
BetterLife FSHD
Finding Care
FSHD Navigator
Newly Diagnosed with FSHD?
FSHD Clinical Care
Additional Resources
Adaptive Equipment
Coordinating Care
Caregiver Self-care
Financial/Legal Resources
Family Planning
Get Involved
Communities
Local Chapters
Online Communities
Gathering Place
Social Media
Parents’ Roundtable Chapter
World FSHD Alliance
Events
Walk & Roll to Cure FSHD
FSHD 360 Regional Conferences
FSHD Connect Conference
World FSHD Day
How to Help
Ways to Give
Fundraising
Donate
Volunteer
Advocacy
Government Advocacy
FDA Advocacy
Voice of the Patient Report
Upper Body Mobility
Payor Advocacy
True Cost of FSHD
Share Your FSHD Story
Research & Clinical Care
Research & Clinical Trials
Drug Development Pipeline
Clinical Trial Research Network
Current Trials and Studies
Clinical Trial Education
Clinical Trials 101
Are Clinical Trials Right for Me?
How to Get Started with a Clinical Trial
Screening and consent
What to expect
After a Trial
Research Updates
For Researchers
International Research Congress
BetterLife FSHD Research Gateway
Apply for a Grant
For Clinicians
Continuing Education
FSHD Masterclass
Therapeutic Accelerator
Project Mercury
Global Innovation Hub
About Us
About the FSHD Society
History
Our Mission
Our Impact
Research We Have Funded
Our Team
Our Partners
Financials
Media Center
Brand Guidelines
News & Media
Blog
FSHD Research
FSHD Society News
Fundraising & Events
General
Living with FSHD
Health and Medicine
Mental Health
PT and Exercise
Tips and Tricks
Media & PR
Media Library
FSHD Straight Talk Podcast
The FSHD Advocate Magazine
Events
Blog
BetterLife
Donate Today
Search for:
Donate
Today
back to Blog
Lives touched by FSH muscular dystrophy
Posted on
February 17th, 2014
2/17/14
Share
Filed under:
Living with FSHD
Tags:
FSH muscular dystrophy
,
FSHD
,
patient stories
,
rare disease advocacy
,
Video
Comments are closed.
back to top
We've detected you might be speaking a different language. Do you want to change to:
English
English
العربية
Español de México
Français du Canada
简体中文
Change Language
Close and do not switch language
We've detected you might be speaking a different language. Do you want to change to:
English
English
العربية
Español de México
Français du Canada
简体中文
Change Language
English
العربية
Español de México
Français du Canada
简体中文
English English 
العربية
Español de México
Français du Canada
简体中文
