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News

Home / Blog

Progress in FSHD Muscular Dystrophy Research Hailed at International Meeting

November 6, 2012 Pinned Post Leave a Comment

2012 Facioscapulohumeral Muscular Dystrophy (FSHD) International Research Consortium Meeting for FSHD research professionals held in San Francisco was a success! Progress in FSHD Muscular Dystrophy Research Hailed at International Meeting… Read More »

Filed Under: FSHD Society News

Celebrities Come Out for FSH Muscular Dystrophy

February 2, 2021 Pinned Post Leave a Comment

Los Angeles, CA / October 03, 2012 Fans of the Fox TV hit series “Glee” know [Max Adleras the actor behind “Dave Karofsky”, the closeted football jock who tormented Kurt Hummel but… Read More »

Filed Under: FSHD Society News, Media & PR

Musical Stars Shine for FSH Muscular Dystrophy

February 2, 2021 Pinned Post Leave a Comment

New York, NY / September 25, 2012 For years, Steven Blier has occupied the limelight as a celebrated pianist and advocate for the art song. He has toured with opera superstars like… Read More »

Filed Under: FSHD Society News, Media & PR

A Festive Evening of Song, at the New York Botanical Garden, Monday, September 24, raised nearly $250,000

September 24, 2012 Pinned Post Leave a Comment

A Festive Evening of Song, at the New York Botanical Garden, Monday, September 24, raised nearly $250,000 for FSHD research More. Many thanks to Steven Blier, Kelli O’Hara, Judy Seslowe,… Read More »

Filed Under: FSHD Society News

FSH Watch Summer/Fall 2012

February 2, 2021 Pinned Post Leave a Comment

Highlights include: Introduction of June Kinoshita, the new Executive Director of the FSHD Society. She describes a plan to raise visibility of FSH muscular dystrophy. Atlanta Patient-Researcher meeting. The state… Read More »

Filed Under: FSHD Society News

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