Highlights include: Introduction of June Kinoshita, the new Executive Director of the FSHD Society. She describes a plan to raise visibility of FSH muscular dystrophy. Atlanta Patient-Researcher meeting. The state… Read More »
FSH Watch Summer/Fall 2012
June Kinoshita joins the FSH Society as Executive Director
June Kinoshita joins the FSH Society as Executive Director
Important paper on FSHD published in Human Molecular Genetics
Important paper on FSHD published in Human Molecular Genetics by scientists at the BBRI NIH NICHD Sen. Paul Wellstone MDCRC for FSHD. The distinct message in the paper is that DUX4-fl expression is necessary… Read More »
Get involved with research! FSHD-affected and FSHD-unaffected volunteers needed
Get involved with research! FSHD-affected and FSHD-unaffected volunteers needed for research study using (MRI) and magnetic resonance spectroscopy (MRS) imaging in skeletal muscle at KKI, Baltimore, Maryland. Learn more about… Read More »
The Society’s 2012 International Patient and Researcher Network Meeting
The Society’s 2012 International Patient and Researcher Network Meeting held Saturday, June 30 and Sunday July 1, in Atlanta, Georgia was a resounding success. Final program HERE. Thank you to… Read More »