Lighting the Way to a Cure

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Welcome to the Minnesota Chapter!

Thank you for visiting the Minnesota Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Make plans now to Walk & Roll with us in 2022!

Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in Minnesota, we are making plans to build on the success of last year's walk and hope you will join us on Sunday, September 25th at the Mount Normandale Lake Bandshell in Bloomington!

Want to help plan or organize the Minnesota Walk & Roll to Cure FSHD? I'd love to have you! Let me know at MinnesotaChapter@FSHDSociety.org

Want to know more about the Walk & Roll? Learn More

To contact us directly, please email: MinnesotaChapter@fshdsociety.org

Follow our local chapter on Facebook for news and notes about regional happenings. And please become an official member of our chapter to ensure you never miss a thing! Simply fill out the form in the right sidebar.

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Jacob Wise

Jacob Wise

Chapter Director

I’m Jacob Wise. I live in Edina, MN with my wife and three children.

I was diagnosed with FSHD in 2001 when I was 23 years old. As my condition progressed I felt an urge to become an active contributor within the FSHD community. So when the opportunity came to help create a Minnesota Chapter, I was excited to take part. I look forward to meeting others affected by FSHD and fostering a local support group. Together we will find a cure.

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of your local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

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