Welcome to the Minnesota Chapter!
Thank you for visiting the Minnesota Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Join Us For Lab Day at the University of Minnesota!
Lab Day, presented by the MD Center at the University of Minnesota, is being held on Saturday, March 25th. Please join us for this amazing opportunity!
We will have a table there representing the Minnesota Chapter and the FSHD Society...come by and say hi!
View the full flyer here!
Thank you for supporting the Walk & Roll in 2022!
A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Sunday, Sept. 25th at the Mount Normandale Lake Bandshell in Bloomington, Minnesota! We are thrilled to announce that we have exceeded our goal of $35,000, raising almost $40,000 https://team.fshdsociety.org/mnwalkroll
Want to know more about the Walk & Roll? Learn More
To contact us directly, please email: MinnesotaChapter@fshdsociety.org
Follow our local chapter on Facebook for news and notes about regional happenings. And please become an official member of our chapter to ensure you never miss a thing! Simply fill out the form in the right sidebar.
FSHD Radio: Hot off the PressFacebook and YouTube
Thursday, March 23rd On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »
Feeling Fit with FSHD: Hands and arms part 2
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »
FSHD University: Novel treatment strategies for FSHDZoom web conference
1:30 PM ET | 12:30 PM CT | 11:30 AM MT | 10:30 AM PT Nizar Saad, PhD Nizar Saad, PhD is an assistant professor at the Center for Gene... Read More »