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Minnesota Chapter

Home / Connect / Local Chapters / Minnesota Chapter
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Welcome to the Minnesota Chapter!

Thank you for visiting the Minnesota Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

MN Lab Day Invite 23

Join Us For Lab Day at the University of Minnesota!

Lab Day, presented by the MD Center at the University of Minnesota, is being held on Saturday, March 25th. Please join us for this amazing opportunity!

We will have a table there representing the Minnesota Chapter and the FSHD Society...come by and say hi!

View the full flyer here!

2022 Walk & Roll Graphic for Chapter Pages

Thank you for supporting the Walk & Roll in 2022!

A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Sunday, Sept. 25th at the Mount Normandale Lake Bandshell in Bloomington, Minnesota! We are thrilled to announce that we have exceeded our goal of $35,000, raising almost $40,000 https://team.fshdsociety.org/mnwalkroll

Want to know more about the Walk & Roll? Learn More

To contact us directly, please email: MinnesotaChapter@fshdsociety.org

Follow our local chapter on Facebook for news and notes about regional happenings. And please become an official member of our chapter to ensure you never miss a thing! Simply fill out the form in the right sidebar.

Upcoming Events

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Today

March 2023

Thu 23
Featured Featured Mar 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, March 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 23
Featured Featured Mar 23 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD: Hands and arms part 2

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »

Thu 23
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Featured Featured Mar 23 @ 1:30 pm - 2:30 pm

FSHD University: Novel treatment strategies for FSHD

Zoom web conference

1:30 PM ET | 12:30 PM CT | 11:30 AM MT | 10:30 AM PT Nizar Saad, PhD Nizar Saad, PhD is an assistant professor at the Center for Gene... Read More »

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Jacob Wise

Jacob Wise

Chapter Director

I’m Jacob Wise. I live in Edina, MN with my wife and three children.

I was diagnosed with FSHD in 2001 when I was 23 years old. As my condition progressed I felt an urge to become an active contributor within the FSHD community. So when the opportunity came to help create a Minnesota Chapter, I was excited to take part. I look forward to meeting others affected by FSHD and fostering a local support group. Together we will find a cure.

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Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of your local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

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Randolph, MA 02368 U.S.A.

Mail Donations to:

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