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FSHD Lab Day at Nationwide Children’s Hospital

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Jul 8, 2023 @ 10:00 am - 2:00 pm

Please join the Columbus Chapter and Nationwide Children’s Hospital for an exciting day of research and community! Hear from Dr. Kevin Flanigan, Dr. Scott Harper, and Dr. Nizar Saad, then have the opportunity to actively participate in a study! In addition, hear from FSHD Society’s  Columbus Chapter Director Susan Aumiller, screen a short documentary, and connect with local FSHD families.

The Saad lab is conducting a clinical study to identify molecular blood biomarkers for FSHD using a novel approach that focuses on analyzing the content of exosomes, which are tiny particles found in the blood that contain proteins and genetic material. By decoding the exosome content, Dr. Saad’s team hopes to identify non-invasive blood biomarkers that can be used to diagnose and predict FSHD onset, severity, and progression, as well as to assess the efficacy of FSHD therapeutics in future clinical trials.

Blood donations will be collected on-site during this event. Everyone (age 18+) is eligible to donate to this study, as FSHD patients and non-patients are both needed. Your blood donation will play a crucial role in supporting this research and accelerating the validation of therapies in clinical trials. Identifying blood biomarkers for FSHD could significantly improve the diagnosis and management of the disease. Furthermore, this research could pave the way for the development of new treatments and improve the quality of life for individuals affected by FSHD.

Pre-registration is requested to help schedule the labs, and is available by Clicking Here. We look forward to seeing you there!

We are excited to invite our community to take part in this important research!


Columbus Chapter
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Nationwide Children’s Hospital Education Center
575 South 18th Street
Columbus, OH 43205 United States
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