On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.
Our Hot off the Press guest this month is filmmaker Jared Jacobsen. Jared has volunteered with the FSHD Society for many years, and his film studio, Stephen Jake Video Productions is named after his late father, Stephen Jacobsen, who had FSHD. He will be speaking about his award-winning short film, “The Reinventor,” which documents the many transformations made by Amy Bekier, painter and founder of the FSHD Society’s San Diego chapter, while living with FSHD. We are excited to share Jared’s story and hear more details on the making of this authentic and moving film!
Watch the video podcast premiere on the 4th Thursday of every month at 9:00 am CST, either on YouTube or Facebook. Share your thoughts, or post questions in the comments section. You can also access the podcast on any streaming service.