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Lighting the Way to a Cure
8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT
What does your partner need from you or someone who helps with their care? This came up a few months ago, as we talked about how to decide when one needs professional help for their partner. This conversation leads to how to ask your partner what they see as a “need” and what more someone could help with, even occasionally. It also goes to what the care partner feels they need help with in caring for the patient and how to address this. Does this resonate with you? Join our conversation.
This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we prefer to “caregiver” because caring is a partnership, not a one-way street).
Please respect our rules restricting this meeting to care partners. Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.