An event every month that begins at 8:00 pm on day Last of the month, repeating until Dec 27, 2022
8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT
Calling all sharegivers to join us this month for an open-ended conversation about what you most need in the way of information and community support and networking. Your input is vital in helping us develop our monthly meeting into a valuable resource for you.
This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers.
Please respect our rules restricting this meeting to caregivers (or “sharegivers,” as Isaac Prilleltensky has proposed, because providing care to loved ones is a two-way street). Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.