- Who We Are
- Understanding FSHD
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Lighting the Way to a Cure
8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT
Calling all care partners to join us this month for a conversation about helping your loved one with self-care. This can be delicate ground as your partner wants to preserve as much independence as possible while adapting to losses in physical functions. Share your experiences and learn from others who have walked this path. Your input is vital in helping us develop our monthly meeting into a valuable resource for you.
This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we prefer to “caregiver” because caring is a partnership, not a one-way street).
Please respect our rules restricting this meeting to care partners. Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.