Lighting the Way to a Cure

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CarePartner Hour – We need a vacation!

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Jun 28 @ 8:00 pm - 9:00 pm

|Recurring Event (See all)

An event every month that begins at 8:00 pm on day Last of the month, repeating until Dec 27, 2022


8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT

Caring for someone with a disability can feel like a 24/7 situation. Even when you are not literally assisting your loved one, you may feel you can never relax. You become hypervigilant about avoiding accidents. Everything involves planning. So as we approach summer and the prospect of vacations, you might well ask, how does a care partner get a real respite? When you are in the habit of planning everything to the last detail, how do you get back a spirit of carefree spontaneity?

This monthly meeting, formerly known as Sharegiver/ Caregiver, is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers.

Please respect our rules restricting this meeting to CarePartners. Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.

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Jun 28
8:00 pm - 9:00 pm
Event Categories:


Zoom Virtual Meeting
United States