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Lighting the Way to a Cure
First Wednesday of every month
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT
Fatigue is one of the biggest challenges we face, and many of us have come up with strategies to manage fatigue. Let’s share!
This is our mutual support and social group for women of all ages who are living with FSHD. We created this women-only space to discuss health, self-care, and any other topics that we find easier to discuss with other females. Our group is hosted and facilitated by a group of volunteers. We may suggest articles and conversation-starters to get each meeting going, but this is truly your space to share what’s on your mind.
Please register below and we will send out reminders with the Zoom link on the day of each monthly gathering. This is a Zoom meeting and we prefer not to share the link on a public website (to discourage Zoom bombers).