There is much that you can do to maintain the best possible muscle function and overall fitness and health. Exercise can help you regain strength and function to some extent, if you understand which of your muscles are still capable of some recovery. Exercise can also help alleviate pain. There is no one-size-fits-all solution, however. It takes research, persistence, and creativity to find a regimen that works for you and your body. Our downloadable brochure Physical Therapy and Exercise for FSHD was written by leading experts to help you and your physical therapist work as a team.
Scroll down to browse our videos and articles on Physical Therapy and Exercise.
Physical therapy and exercise videos
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Dynamic sitting - exercising in a seated position
We’ve all heard how important a well-tailored exercise program is for people with FSH muscular dystrophy. This is easier said than done, especially if you have difficulty standing up or worry about falling during exercise. In today’s webinar, Nikia Stinson, DPT, discusses upper body weakness and pain that are frequently experienced by people with FSHD and describes exercises that can be done from a seated position to help address these issues. Dr. Stinson is a physical therapist and lead clinical evaluator for ongoing clinical research at the Kennedy Krieger Institute's Center for Genetic Muscle Disorders. -
Serratus Anterior Exercises with Dr. Tina Duong
Tina Duong, MPT, of Stanford Medicine's Day Lab is a research physical therapist at Stanford with over 10 years of clinical experience in neuromuscular and pediatric research. She produced this video for the FSHD Society's 2020 FSHD Connect Classroom conference. For more information, visit www.fshdsociety.org. -
CAT COW EXERCISES
Tina Duong, MPT, of Stanford Medicine's Day Lab is a research physical therapist at Stanford with over 10 years of clinical experience in neuromuscular and pediatric research. She produced this video for the FSHD Society's 2020 FSHD Connect Classroom conference. For more information, visit www.fshdsociety.org.
Physical therapy and exercise blog posts
Women on Wellness (monthly Zoom)
By popular demand, we are launching our Women on Wellness Zoom support group starting on Wednesday, October 6. This meeting will take place on the first Wednesday of each month… Read More »
Dynamic Sitting – exercising in a seated position
Here are Dr. Nikia Stinson’s slides (ppt) Equipment List (downloadable) All of these are available on Amazon. Com and other online shopping sites.
Dave Younger’s exercise arsenal
by David Younger, Austin, Texas Over the past ten to fifteen years, I have developed an arsenal of products that I use to stay as healthy and active as possible…. Read More »
Staying Active While at Home
In this recorded webinar, Julie Hershberg, PT, DPT, NCS, presents evidence-based benefits or physical therapy and exercise for patients with facioscapulohumeral muscular dystrophy (FSHD). Dr. Hershberg is a neurologic… Read More »
FSHD Warrior Pose [VIDEO]
by Faye Flatt, Ontario, Canada Yoga has always looked effortless to me and I enjoy watching the gentle movements from one pose and smooth transition to another. In my head… Read More »
Self-healing from muscular dystrophy
BY BEATRIZ NASCIMENTO, SAO PAOLO, BRAZIL I had some mild muscle weakness since childhood, but in my 20s everything was getting harder. I was constantly fatigued and stressed. By my… Read More »