There is much that you can do to maintain the best possible muscle function and overall fitness and health. Exercise can help you regain strength and function to some extent, if you understand which of your muscles are still capable of some recovery. Exercise can also help alleviate pain. There is no one-size-fits-all solution, however. It takes research, persistence, and creativity to find a regimen that works for you and your body. Our downloadable brochure Physical Therapy and Exercise for FSHD was written by leading experts to help you and your physical therapist work as a team.
Scroll down to browse our videos and articles on Physical Therapy and Exercise.
Physical therapy and exercise videos
Feeling Fit with FSHD: Abs and BreathingDisclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider.
Qi Gong teacher Frank Hanley leads a session on core strength and breathing exercises. Frank learned about the importance of maintaining core strength through his personal experiences living with FSHD.
Frank is a martial artist, author, and teacher of Hung Ga style Kung Fu, Taijiquan and multiple Qigong styles and practices. Frank was awarded Qigong Instructor Certification by the National Qigong Association. Frank practices qigong and kung fu daily. He believes that exercise and daily practice should be part of everyone’s lifestyle.
In 2020, Frank organized and launched the FSHD Society South Carolina Chapter and served as Chapter Director. Frank also created the “Qigong for FSHD” Facebook Group where he publishes videos showing various qigong routines to help combat the effects of FSHD. “I practice qigong and kung fu daily because the FSHD never takes a day off. FSHD is always attacking me. I need to be fighting back.”
In our first “Feeling Fit” session Frank introduces several breathing techniques to help strengthen the diaphragm, abdominal muscles and improve breathing. In future sessions, Frank will discuss and demo routines for other muscle groups (shoulders, arms, legs) and a practice to help strengthen the immune system.
For more information visit fshdsociety.org
Nutritional and exercise interventions for FSHDFSHD University webinar (September 15, 2022) by Mark Tarnopolsky, MD PhD, Professor of Pediatrics and Medicine and Director of Neuromuscular and Neurometabolic Clinic at McMaster University Medical Center in Hamilton, Ontario, Canada. Dr. Tarnopolsky is also CEO and CSO of Exerkine Corporation. He sees a large number of FSHD patients in his clinic and has observed that exercise provides significant benefits to them. Research in Dr. Tarnopolsky’s lab investigates the role of exercise and antioxidants as potential therapeutic interventions for FSHD.
Dr. Tarnopolsky explains, “FSHD is a genetic disorder that results from the toxic over-expression of the DUX4 gene, leading to skeletal muscle atrophy and weakness. The final common pathways of cellular dysfunction in this disorder are similar to other muscle diseases (i.e., myotonic MD, mitochondrial disease and sporadic inclusion body myopathy) and human aging associated muscle weakness (sarcopenia) and include; muscle stem cell dysfunction, mitochondrial dysfunction, oxidative stress and a reduction in muscle protein synthesis. We and others have shown the long-term clinical benefit from exercise in DM1, aging and mitochondrial disease and will present encouraging data on the long-term benefit of exercise in FSHD. Furthermore, appropriately targeted multi-ingredient dietary approaches represent a form of “nutra-pharmaceutical” therapy and we have shown significant benefits in aging, obesity and mitochondrial disease. I will discuss the clinical support for optimal dietary nutrient intake and the potential for a multi-ingredient nutrapharmaceutical to target the primary and secondary cellular consequences of FSHD that can be an immediately applied therapy and an adjunct to any future genetic or small molecule approaches.”
For more information visit fshdsociety.org
FSHD Radio Show Community Profiles with Dylan KingThis month's guest for our Community Profiles podcast episode is Dylan King, a Marine Corps veteran who lives with FSHD. Dylan shares his diagnosis story, how his FSHD affected his military career, and how he is using his love of fitness to thrive.
He is excited to share his story and his fitness expertise with the FSHD community, and we can't wait to share Tim and Dylan's great conversation with you!
Find the podcast episode on most podcast streaming services or watch the video interview here.
For more details about our FSHD Radio Show podcast and our host, Tim Hollenback, click here: https://www.fshdsociety.org/fshd-radio
Physical therapy and exercise blog posts
Here are Dr. Nikia Stinson’s slides (ppt) Equipment List (downloadable) All of these are available on Amazon. Com and other online shopping sites.