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Exercise and Fitness

Home / Exercise and Fitness

There is good evidence that exercise can help slow and even reverse the loss of function caused by FSHD. Exercise is also essential for your overall fitness and health. While exercise probably does not reverse the disease process itself, it helps strengthen muscles that are still healthy. A physical or occupational therapist can guide you in figuring out targeted exercises, stretches, etc. to support the healthy muscles and develop ways of moving and carrying out daily functions that avoid causing muscle strain and pain. There is no one-size-fits-all solution, however. It takes research, persistence, and creativity to find a regimen that works for you and your body. Our downloadable brochure Physical Therapy and Exercise for FSHD was written by leading experts to help you and your physical therapist work as a team. 

Scroll down to browse our videos and articles on Physical Therapy and Exercise.

Living with FSHD

Physical therapy and exercise videos

  • Feeling Fit with FSHD: Hands and Arms, Part 2, March 2023

    Feeling Fit with FSHD: Hands and Arms, Part 2, March 2023

  • Feeling Fit with FSHD: Hands and Arms, Part 1, March 2023

    Feeling Fit with FSHD: Hands and Arms, Part 1, March 2023

  • Feeling Fit with FSHD: Postural Changes, Part 2, February 2023

    Feeling Fit with FSHD: Postural Changes, Part 2, February 2023

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Physical therapy and exercise blog posts

Dynamic Sitting – exercising in a seated position

By jkinoshita | August 12, 2021

Here are Dr. Nikia Stinson’s slides (ppt) Equipment List (downloadable) All of these are available on Amazon. Com and other online shopping sites.  

Dave Younger’s exercise arsenal

By jkinoshita | May 24, 2021

by David Younger, Austin, Texas Over the past ten to fifteen years, I have developed an arsenal of products that I use to stay as healthy and active as possible…. Read More »

Staying Active While at Home

By jkinoshita | September 22, 2020

  In this recorded webinar, Julie Hershberg, PT, DPT, NCS, presents evidence-based benefits or physical therapy and exercise for patients with facioscapulohumeral muscular dystrophy (FSHD). Dr. Hershberg is a neurologic… Read More »

FSHD Warrior Pose [VIDEO]

By jkinoshita | September 12, 2019

by Faye Flatt, Ontario, Canada Yoga has always looked effortless to me and I enjoy watching the gentle movements from one pose and smooth transition to another.  In my head… Read More »

Self-healing from muscular dystrophy

By jkinoshita | September 5, 2019

BY BEATRIZ NASCIMENTO, SAO PAOLO, BRAZIL I had some mild muscle weakness since childhood, but in my 20s everything was getting harder. I was constantly fatigued and stressed. By my… Read More »

Medicare coverage for ongoing maintenance physical therapy

By jkinoshita | May 20, 2019

Article adapted with permission from Melissa Fox, PT, DPT, University of Virginia Health System. There are times when a short course of physical therapy (PT) can meet your current needs,… Read More »

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