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Today

January 2023

Tue 31
Featured Featured Jan 31 @ 8:00 pm - 9:00 pm

CarePartner Hour: What are your “needs”?

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT What does your partner need from you or someone who helps with their care? This came... Read More »

February 2023

Wed 1
Featured Featured Feb 1 @ 5:00 pm - 6:00 pm

Women on Wellness: Life Hacks

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Let’s learn from each other by sharing great tricks for... Read More »

Thu 9
Featured Featured Feb 9 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD: postural changes

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join physiotherapist Ulrike Uta of the... Read More »

Mon 13
Featured Featured Feb 13 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 14
Featured Featured Feb 14 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, February 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 14
Featured Featured Feb 14 @ 1:00 pm - 2:00 pm

FSHD University: FORTITUDE A Phase 1/2 Clinical Trial of AOC 1020 in Adults with FSHD

Zoom Web Conference

Learn about the FDA's recent fast track designation for Avidity's FSHD therapeutic here. 1:00 pm ET | noon CT | 11:00 am MT | 10:00 am PT | 18:00 GMT... Read More »

Thu 16
FSHD University Logo
Featured Featured Feb 16 @ 1:00 pm - 2:00 pm

FSHD University – Rita Perlingeiro on stem cell research

1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT | 18:00 UK | 19:00 CET Dr. Rita Perlingeiro Our webinar speaker is Dr. Rita... Read More »

Tue 21
Featured Featured Feb 21 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 23
Featured Featured Feb 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, February 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 23
Featured Featured Feb 23 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD: Postural Changes Part 2

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Ulrike Uta will join us to... Read More »

Tue 28
Featured Featured Feb 28 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

March 2023

Wed 1
Featured Featured Mar 1 @ 5:00 pm - 6:00 pm Recurring Event Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Thu 9
Featured Featured Mar 9 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 13
Featured Featured Mar 13 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 14
Featured Featured Mar 14 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, March 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Thu 16
FSHD University Logo
Featured Featured Mar 16 @ 1:00 pm - 2:00 pm

FSHD University: Novel treatment strategies for FSHD

1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT Nizar Saad, PhD Nizar Saad, PhD is an assistant professor at the Center for Gene... Read More »

Tue 21
Featured Featured Mar 21 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 23
Featured Featured Mar 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, March 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 23
Featured Featured Mar 23 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Tue 28
Featured Featured Mar 28 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

April 2023

Wed 5
Featured Featured Apr 5 @ 5:00 pm - 6:00 pm Recurring Event Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 10
Featured Featured Apr 10 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 11
Featured Featured Apr 11 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, April 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Thu 13
Featured Featured Apr 13 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 18
Featured Featured Apr 18 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Tue 25
Featured Featured Apr 25 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 27
Featured Featured Apr 27 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, April 27th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 27
Featured Featured Apr 27 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

May 2023

Wed 3
Featured Featured May 3 @ 5:00 pm - 6:00 pm Recurring Event Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Sat 6
Featured Featured May 6 @ 10:00 am - 3:30 pm

Rochester FSHD 360

University of Rochester Saunders Research Building 265 Crittenden Blvd., Rochester, NY

9:00 a.m. US ET doors open | 10:00-3:30 p.m. US ET conference sessions The FSHD Society, in collaboration with the University of Rochester Medical Center, is hosting this year’s Rochester... Read More »

Mon 8
Featured Featured May 8 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 9
Featured Featured May 9 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, May 9th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Thu 11
Featured Featured May 11 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 16
Featured Featured May 16 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 18
FSHD University Logo
Featured Featured May 18 @ 1:00 pm - 2:00 pm

FSHD University: What every newly diagnosed person should know

Zoom Web Conference

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Bakri Elshiekh We want to make sure that newcomers to the FSHD community have an... Read More »

Thu 25
Featured Featured May 25 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, May 25th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 25
Featured Featured May 25 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Tue 30
Featured Featured May 30 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

June 2023

Wed 7
Featured Featured Jun 7 @ 5:00 pm - 6:00 pm Recurring Event Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Thu 8
Featured Featured Jun 8 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 12
Featured Featured Jun 12 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 13
Featured Featured Jun 13 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, June 13th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Thu 15
Featured Featured Jun 15 - Jun 16

30th Annual International Research Congress on FSHD

Radisson Blu Milan Italy Milan

SAVE THE DATE! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. World renowned clinicians, medical researchers, pharmaceutical... Read More »

Tue 20
Featured Featured Jun 20 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 22
Featured Featured Jun 22 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, June 22nd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 22
Featured Featured Jun 22 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Tue 27
Featured Featured Jun 27 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

July 2023

Wed 5
Featured Featured Jul 5 @ 5:00 pm - 6:00 pm Recurring Event Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 10
Featured Featured Jul 10 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 11
Featured Featured Jul 11 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, July 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Thu 13
Featured Featured Jul 13 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 18
Featured Featured Jul 18 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Tue 25
Featured Featured Jul 25 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 27
Featured Featured Jul 27 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, July 27th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 27
Featured Featured Jul 27 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Thu 27
Featured Featured Jul 27 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who are interested in exercise and fitness, we... Read More »

August 2023

Wed 2
Featured Featured Aug 2 @ 5:00 pm - 6:00 pm Recurring Event Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Tue 8
Featured Featured Aug 8 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, August 8th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Thu 10
Featured Featured Aug 10 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 14
Featured Featured Aug 14 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 15
Featured Featured Aug 15 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 24
Featured Featured Aug 24 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, August 24th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 24
Featured Featured Aug 24 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Tue 29
Featured Featured Aug 29 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

September 2023

Wed 6
Featured Featured Sep 6 @ 5:00 pm - 6:00 pm Recurring Event Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 11
Featured Featured Sep 11 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 12
Featured Featured Sep 12 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, September 12th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Thu 14
Featured Featured Sep 14 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 19
Featured Featured Sep 19 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Tue 26
Featured Featured Sep 26 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
Featured Featured Sep 28 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, September 28th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 28
Featured Featured Sep 28 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

October 2023

Wed 4
Featured Featured Oct 4 @ 5:00 pm - 6:00 pm Recurring Event Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 9
Featured Featured Oct 9 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 10
Featured Featured Oct 10 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, October 10th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Thu 12
Featured Featured Oct 12 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 17
Featured Featured Oct 17 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 26
Featured Featured Oct 26 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, October 26th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 26
Featured Featured Oct 26 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Tue 31
Featured Featured Oct 31 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

November 2023

Wed 1
Featured Featured Nov 1 @ 5:00 pm - 6:00 pm Recurring Event Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Thu 9
Featured Featured Nov 9 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 13
Featured Featured Nov 13 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 14
Featured Featured Nov 14 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, November 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 21
Featured Featured Nov 21 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 23
Featured Featured Nov 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, November 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 23
Featured Featured Nov 23 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Tue 28
Featured Featured Nov 28 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

December 2023

Wed 6
Featured Featured Dec 6 @ 5:00 pm - 6:00 pm Recurring Event Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 11
Featured Featured Dec 11 @ 5:00 pm - 6:00 pm Recurring Event Wellness Hour

Wellness Hour – Toward Hope

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will have a special guest to discuss mental health issues that affect... Read More »

Tue 12
Featured Featured Dec 12 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, December 12th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Thu 14
Featured Featured Dec 14 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 19
Featured Featured Dec 19 @ 7:00 pm - 8:00 pm Recurring Event Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Tue 26
Featured Featured Dec 26 @ 8:00 pm - 9:00 pm Recurring Event CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
Featured Featured Dec 28 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, December 28th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 28
Featured Featured Dec 28 @ 12:00 pm - 1:30 pm Recurring Event Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

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