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  1. Events
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Today

June 2023

Wed 7
Featured Featured Jun 7 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Instrumental activities of daily living

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is what we call "Instrumental ADL’s... Read More »

Thu 8
Featured Featured Jun 8 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Bill Herzberg

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Mitch Wade and Bill Herzberg Last month... Read More »

Mon 12
Wellness Hour
Featured Featured Jun 12 @ 5:00 pm - 6:00 pm

Wellness Hour Movie Night – Crip Camp

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Change of topic! Instead  of Happy Hour, this month we will enjoy another Movie Night... Read More »

Tue 13
FSHD Society Radio logo with microphone
Featured Featured Jun 13 @ 8:00 am

FSHD Radio: Community Profiles with Actress and Advocate Lauren “Lolo” Spencer

Facebook and YouTube

Tuesday, June 13th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 13
Featured Featured Jun 13 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 15
Featured Featured Jun 15 - Jun 16

30th Annual International Research Congress on FSHD

Radisson Blu Milan Italy Milan

SAVE THE DATE! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. World renowned clinicians, medical researchers, pharmaceutical... Read More »

Tue 20
Featured Featured Jun 20 @ 12:00 am - 11:59 pm

World FSHD Day!

Virtual Denver

Join us for the annual World FSHD Day to raise awareness of FSHD globally over social media on June 20th! Learn about the orange slice selfie campaign and download our... Read More »

Tue 20
Early-Onset Parents Roundtable
Featured Featured Jun 20 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable – Sharon Terry: mom, advocate, change-maker

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for a conversation with Sharon F. Terry, President and CEO of Genetic Alliance,... Read More »

Thu 22
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Jun 22 @ 9:00 am

FSHD Radio: Hot off the Press – IRC 2023 Recap

Facebook and YouTube

Thursday, June 22nd  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 22
Featured Featured Jun 22 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD Special Summertime Routine

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Frank Hanley will lead today's session with... Read More »

Sat 24
Featured Featured Jun 24 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 27
Featured Featured Jun 27 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

July 2023

Wed 5
Featured Featured Jul 5 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 10
Wellness Hour
Featured Featured Jul 10 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 11
FSHD Society Radio logo with microphone
Featured Featured Jul 11 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, July 11th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 11
Featured Featured Jul 11 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 13
Featured Featured Jul 13 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 18
Early-Onset Parents Roundtable
Featured Featured Jul 18 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 20
FSHD University Logo
Featured Featured Jul 20 @ 1:00 pm - 2:00 pm

FSHD University: MOVE and MOVE+ Update

Zoom Web Conference

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT MOVE and MOVE+ are the largest natural history studies to date of FSHD. Our webinar will... Read More »

Sat 22
Featured Featured Jul 22 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 25
Featured Featured Jul 25 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 27
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Jul 27 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, July 27th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 27
Featured Featured Jul 27 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Thu 27
Featured Featured Jul 27 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who are interested in exercise and fitness, we... Read More »

August 2023

Wed 2
Featured Featured Aug 2 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Tue 8
FSHD Society Radio logo with microphone
Featured Featured Aug 8 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, August 8th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 8
Featured Featured Aug 8 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 10
Featured Featured Aug 10 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 14
Wellness Hour
Featured Featured Aug 14 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 15
Early-Onset Parents Roundtable
Featured Featured Aug 15 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 24
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Aug 24 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, August 24th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 24
Featured Featured Aug 24 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 26
Featured Featured Aug 26 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 29
Featured Featured Aug 29 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

September 2023

Wed 6
Featured Featured Sep 6 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Sat 9
2023 Walk and Roll Calendar Feature
Featured Featured Sep 9 @ 8:30 am - 12:30 pm

Alberta Walk & Roll

RiverWalk Plaza 618 Confluence Way SE, Calgary, Alberta

Alberta Walk & Roll Saturday, September 9, 2023 Registration at 8:30 a.m. TENTATIVE - RiverWalk Plaza: 618 Confluence Way SE Calgary AB T2G 0G1 Canada Register to “walk or roll”... Read More »

Sun 10
2023 Walk and Roll Calendar Feature
Featured Featured Sep 10 @ 8:00 am - 12:00 pm

Colorado Walk & Roll

Philip S. Miller Park - Amphitheater 1375 E Plum Creek Pkwy, Castle Rock, CO

Colorado Walk & Roll Sunday, September 10, 2023 Registration & Check-in 8am Philip S. Miller Park Amphitheater - Castle Rock, CO Register to “walk or roll” today! Invite your family,... Read More »

Sun 10
2023 Walk and Roll Calendar Feature
Featured Featured Sep 10 @ 1:00 pm - 5:00 pm

Pacific Northwest Walk & Roll

Cockrell Cider 6613 114th Ave Ct E, Puyallup, WA

Pacific Northwest Walk & Roll Sunday, September 10, 2023 1:00 PM Cockrell Cider, 6613 114th Ave Ct E, Puyallup, WA. 98372 Register to “walk or roll” today! Invite your family,... Read More »

Mon 11
Wellness Hour
Featured Featured Sep 11 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 12
FSHD Society Radio logo with microphone
Featured Featured Sep 12 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, September 12th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 12
Featured Featured Sep 12 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 14
Featured Featured Sep 14 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Sat 16
2023 Walk and Roll Calendar Feature
Featured Featured Sep 16 @ 9:00 am - 1:00 pm

Ontario Walk & Roll

Lake Aquitaine Park 6655 GLEN ERIN DR, Mississauga, Ontario

Ontario Walk & Roll Saturday, September 16th 2023 9:00 am check in Lake Aquitaine Park - Mississauga, ON Register to "walk or roll" today! Invite your family, friends, club members,... Read More »

Sat 16
2023 Walk and Roll Calendar Feature
Featured Featured Sep 16 @ 10:00 am - 2:00 pm

Chicago Walk & Roll

Citizen's Park - Amphitheatre 511 N Lake Zurich Rd, Barrington, IL

Chicago Walk & Roll Saturday, September 16th 2023, 10:00 am Citizens Park, Robert Soule Amphitheater Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates... Read More »

Sat 16
2023 Walk and Roll Calendar Feature
Featured Featured Sep 16 @ 5:00 pm - 9:00 pm

NE Florida Walk & Roll

121 Financial Ballpark 301 A. Philip Randolph Boulevard, Jacksonville, FL

NE Florida Walk & Roll Saturday, September 16, 2023 Arrival & check-in starting at 5pm. Burgers and reception 5:30 - 6:30pm, Baseball game starts at 6:35pm. Jacksonville Jumbo Shrimp Baseball... Read More »

Sun 17
2023 Walk and Roll Calendar Feature
Featured Featured Sep 17 @ 9:00 am - 1:00 pm

Los Angeles Walk & Roll

Woodley Park 6350 Woodley Ave, Van Nuys, CA

Los Angeles Walk & Roll September 17, 2023 Registration 9am, Opening Ceremonies 9:45am, Walk Starts 10am Woodley Park/Lake Balboa, 6350 Woodley Ave, Van Nuys, CA 91436 Register to “walk or... Read More »

Tue 19
Early-Onset Parents Roundtable
Featured Featured Sep 19 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Sat 23
2023 Walk and Roll Calendar Feature
Featured Featured Sep 23 @ 9:00 am - 1:00 pm

Columbus Walk & Roll

Coffman Park Pavillion 5200 Emerald Pkwy, Dublin, OH

Columbus Walk & Roll Saturday, September 23, 2023 9:00 am Coffman Park Pavilion 5200 Emerald Pkwy Dublin, OH 43017 Register to “walk or roll” today! Invite your family, friends, club... Read More »

Sat 23
2023 Walk and Roll Calendar Feature
Featured Featured Sep 23 @ 9:00 am - 1:00 pm

Intermountain Walk & Roll

Canyon Rim Park East Pavillion 3100 S Grace Street, Millcreek, UT

Intermountain Walk & Roll Saturday, September 23, 2023 9:00am Registration Canyon Rim Park, East Pavilion, Millcreek UT Register to “walk or roll” today! Invite your family, friends, club members, neighbors,... Read More »

Sat 23
2023 Walk and Roll Calendar Feature
Featured Featured Sep 23 @ 9:00 am - 1:00 pm

St. Louis Walk & Roll

Hawk Ridge Park 8392 Orf Road, Lake St. Louis, MO

St. Louis Walk & Roll Saturday, September 23, 2023 9am-Registration/10am-Walk&Roll Hawk Ridge Park/Zachary's Playground, 8392 Orf Road, Lake Saint Louis, MO 63367 Register to “walk or roll” today! Invite your... Read More »

Sat 23
Featured Featured Sep 23 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Sat 23
2023 Walk and Roll Calendar Feature
Featured Featured Sep 23 @ 10:00 am - 2:00 pm

Virginia Walk & Roll

Norfolk Zoo 3500 Granby St., Norfolk

Virginia Walk & Roll Saturday, September 23, 2023 Registration opens at 10am Norfolk Zoo, 3500 Granby St., Norfolk, VA 23504 Register to “walk or roll” today! Invite your family, friends,... Read More »

Sat 23
2023 Walk and Roll Calendar Feature
Featured Featured Sep 23 @ 10:30 am - 12:30 pm

Mid-Atlantic Walk & Roll

Alpha Ridge Park 11685 Old Frederick Rd, Marriottsville, MD

Mid-Atlantic Walk & Roll Saturday, September 23, 2023 Registration opens, 10:30 am; Walk, 11:00 - 11:30 am; Team photos, awards, and lunch, 11:30 am - 12:30 pm Alpha Ridge Park,... Read More »

Sun 24
2023 Walk and Roll Calendar Feature
Featured Featured Sep 24 @ 8:00 am - 12:00 pm

Minnesota Walk & Roll

Mount Normandale Lake Bandshell 5901 West 84th Street, Bloomington, MN

Minnesota Walk & Roll Sunday, September 24, 2023, 8:00 am Normandale Lake Bandshell Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation... Read More »

Sun 24
2023 Walk and Roll Calendar Feature
Featured Featured Sep 24 @ 10:00 am - 2:00 pm

New Jersey Shore Walk & Roll

Seaside Heights Boardwalk 1599 Boardwalk, Seaside Heights, NJ

New Jersey Shore Walk & Roll Sunday, September 24, 2023 • 10:00 am Seaside Heights Boardwalk @ Heiring Ave. Register to “walk or roll” today! Invite your family, friends, club... Read More »

Sun 24
2023 Walk and Roll Calendar Feature
Featured Featured Sep 24 @ 2:00 pm - 6:00 pm

West Michigan Walk & Roll

Mulligan's Hollow Lodge 600 Y Drive, Grand Haven, MI

West Michigan Walk & Roll Mulligan's Hollow Lodge, 600 Y Drive, Grand Haven, MI. 49417 Sunday 9/24. Registration Opens: 2pm; Walk Begins: 2:30pm. Register to “walk or roll” today! Invite your... Read More »

Sun 24
2023 Walk and Roll Calendar Feature
Featured Featured Sep 24 @ 2:00 pm - 6:00 pm

North Texas Walk & Roll

Warren Sports Complex 7599 Eldorado Parkway, Frisco, TX

North Texas Walk & Roll Sunday, September 24, 2023 2:00 p.m. registration Warren Sports Complex 7599 Eldorado Parkway, Frisco, TX 75033 Register to “walk or roll” today! Invite your family,... Read More »

Tue 26
Featured Featured Sep 26 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Sep 28 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, September 28th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 28
Featured Featured Sep 28 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 30
2023 Walk and Roll Calendar Feature
Featured Featured Sep 30 @ 8:00 am - 12:00 pm

CenTex Walk & Roll

Champion Park 3830 Brushy Creek Rd, Cedar Park, TX

CenTex Walk & Roll Sunday, September 30, 2023 8:00 am Champion Park Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to... Read More »

Sat 30
2023 Walk and Roll Calendar Feature
Featured Featured Sep 30 @ 8:00 am - 12:00 pm

San Diego Walk & Roll

Harbor Island Park 1875 Harbor Island Dr., San Diego, CA

San Diego Walk & Roll Saturday, September 30, 2023 Registration starts at 8:00 a.m. Harbor Island Park, 1875 Harbor Island Dr., San Diego, CA 92101 Register to “walk or roll”... Read More »

Sat 30
2023 Walk and Roll Calendar Feature
Featured Featured Sep 30 @ 9:00 am - 1:00 pm

Kansas City Walk & Roll

Macken Park 1002 Clark Ferguson Dr., North Kansas City, MO

Kansas City Walk & Roll Saturday, September 30, 2023 Macken Park Festival Shelter Registration 9:00am, Opening Ceremonies 9:45am, Walk Starts 10:00am Register to “walk or roll” today! Invite your family,... Read More »

October 2023

Wed 4
Featured Featured Oct 4 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Sat 7
2023 Walk and Roll Calendar Feature
Featured Featured Oct 7 @ 11:00 am - 3:00 pm

New England Walk & Roll

Optum Building Rooftop 1325 Boylston Street, Boston, MA

New England Walk & Roll Saturday, October 7, 2023 11:00am Check In Optum Roofdeck, 1325 Boylston St., Boston MA 02215 Register to “walk or roll” today! Invite your family, friends,... Read More »

Mon 9
Wellness Hour
Featured Featured Oct 9 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 10
FSHD Society Radio logo with microphone
Featured Featured Oct 10 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, October 10th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 10
Featured Featured Oct 10 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 12
Featured Featured Oct 12 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Sun 15
2023 Walk and Roll Calendar Feature
Featured Featured Oct 15 @ 10:00 am - 2:00 pm

Atlanta Walk & Roll

Chattahoochee Nature Center 9135 Willeo Rd, Roswell, GA

Atlanta Walk & Roll Sunday, October 15, 2023 Registration at 10:00 a.m. Chattahoochee Nature Center, 9135 Willeo Rd, Roswell, GA 30075 Register to “walk or roll” today! Invite your family,... Read More »

Tue 17
Early-Onset Parents Roundtable
Featured Featured Oct 17 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 26
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Oct 26 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, October 26th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 26
Featured Featured Oct 26 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 28
Featured Featured Oct 28 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 31
Featured Featured Oct 31 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

November 2023

Wed 1
Featured Featured Nov 1 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Thu 9
Featured Featured Nov 9 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 13
Wellness Hour
Featured Featured Nov 13 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 14
FSHD Society Radio logo with microphone
Featured Featured Nov 14 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, November 14th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 14
Featured Featured Nov 14 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 21
Early-Onset Parents Roundtable
Featured Featured Nov 21 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 23
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Nov 23 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, November 23rd  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 23
Featured Featured Nov 23 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 25
Featured Featured Nov 25 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 28
Featured Featured Nov 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

December 2023

Wed 6
Featured Featured Dec 6 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 11
Wellness Hour
Featured Featured Dec 11 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 12
FSHD Society Radio logo with microphone
Featured Featured Dec 12 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, December 12th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Tue 12
Featured Featured Dec 12 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 14
Featured Featured Dec 14 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 19
Early-Onset Parents Roundtable
Featured Featured Dec 19 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Sat 23
Featured Featured Dec 23 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 26
Featured Featured Dec 26 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Dec 28 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, December 28th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

Thu 28
Featured Featured Dec 28 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

January 2024

Tue 9
Featured Featured Jan 9, 2024 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 16
Early-Onset Parents Roundtable
Featured Featured Jan 16, 2024 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Sat 27
Featured Featured Jan 27, 2024 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

February 2024

Tue 13
Featured Featured Feb 13, 2024 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

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