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Today

March 2023

Tue 28
Featured Featured Mar 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

April 2023

Mon 10
Wellness Hour
Featured Featured Apr 10 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 11
Featured Featured Apr 11 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, April 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 11
Featured Featured Apr 11 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Wed 12
Featured Featured Apr 12 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Looking good!

Zoom Virtual Meeting

UPDATED: Date changed this month because of Passover 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we continue our conversations about... Read More »

Thu 13
Featured Featured Apr 13 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 18
Early-Onset Parents Roundtable
Featured Featured Apr 18 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Sat 22
Featured Featured Apr 22 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 25
Featured Featured Apr 25 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 27
Featured Featured Apr 27 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, April 27th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 27
Featured Featured Apr 27 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

May 2023

Wed 3
Featured Featured May 3 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Thu 4
FSHD University Logo
Featured Featured May 4 @ 1:00 pm - 2:00 pm

FSHD University: MANOUEVRE clinical trial

Zoom Web Conference

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT We have invited a speaker from Hoffman-LaRoche to describe its MANOUEVRE clinical trial for FSHD. The... Read More »

Sat 6
Featured Featured May 6 @ 10:00 am - 4:00 pm

Rochester FSHD 360

University of Rochester Saunders Research Building 265 Crittenden Blvd., Rochester, NY

9:00 a.m. US ET doors open | 10:00-4:00 p.m. US ET conference sessions The FSHD Society, in collaboration with the University of Rochester Medical Center, is hosting this year’s Rochester... Read More »

Mon 8
Wellness Hour
Featured Featured May 8 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 9
Featured Featured May 9 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, May 9th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 9
Featured Featured May 9 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 11
Featured Featured May 11 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 16
Early-Onset Parents Roundtable
Featured Featured May 16 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 18
FSHD University Logo
Featured Featured May 18 @ 1:00 pm - 2:00 pm

FSHD University: What every newly diagnosed person should know

Zoom Web Conference

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Bakri Elshiekh We want to make sure that newcomers to the FSHD community have an... Read More »

Thu 25
Featured Featured May 25 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, May 25th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 25
Featured Featured May 25 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 27
Featured Featured May 27 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 30
Featured Featured May 30 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

June 2023

Wed 7
Featured Featured Jun 7 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Thu 8
Featured Featured Jun 8 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 12
Wellness Hour
Featured Featured Jun 12 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 13
Featured Featured Jun 13 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, June 13th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 13
Featured Featured Jun 13 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 15
Featured Featured Jun 15 - Jun 16

30th Annual International Research Congress on FSHD

Radisson Blu Milan Italy Milan

SAVE THE DATE! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. World renowned clinicians, medical researchers, pharmaceutical... Read More »

Tue 20
Early-Onset Parents Roundtable
Featured Featured Jun 20 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 22
Featured Featured Jun 22 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, June 22nd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 22
Featured Featured Jun 22 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 24
Featured Featured Jun 24 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 27
Featured Featured Jun 27 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

July 2023

Wed 5
Featured Featured Jul 5 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 10
Wellness Hour
Featured Featured Jul 10 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 11
Featured Featured Jul 11 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, July 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 11
Featured Featured Jul 11 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 13
Featured Featured Jul 13 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 18
Early-Onset Parents Roundtable
Featured Featured Jul 18 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 20
FSHD University Logo
Featured Featured Jul 20 @ 1:00 pm - 2:00 pm

FSHD University: MOVE and MOVE+ Update

Zoom Web Conference

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT MOVE and MOVE+ are the largest natural history studies to date of FSHD. Our webinar will... Read More »

Sat 22
Featured Featured Jul 22 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 25
Featured Featured Jul 25 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 27
Featured Featured Jul 27 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, July 27th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 27
Featured Featured Jul 27 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Thu 27
Featured Featured Jul 27 @ 12:00 pm - 1:30 pm

Feeling Fit with FSHD

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who are interested in exercise and fitness, we... Read More »

August 2023

Wed 2
Featured Featured Aug 2 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Tue 8
Featured Featured Aug 8 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, August 8th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 8
Featured Featured Aug 8 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 10
Featured Featured Aug 10 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 14
Wellness Hour
Featured Featured Aug 14 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 15
Early-Onset Parents Roundtable
Featured Featured Aug 15 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 24
Featured Featured Aug 24 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, August 24th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 24
Featured Featured Aug 24 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 26
Featured Featured Aug 26 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 29
Featured Featured Aug 29 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

September 2023

Wed 6
Featured Featured Sep 6 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 11
Wellness Hour
Featured Featured Sep 11 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 12
Featured Featured Sep 12 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, September 12th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 12
Featured Featured Sep 12 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 14
Featured Featured Sep 14 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 19
Early-Onset Parents Roundtable
Featured Featured Sep 19 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Sat 23
Featured Featured Sep 23 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 26
Featured Featured Sep 26 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
Featured Featured Sep 28 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, September 28th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 28
Featured Featured Sep 28 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

October 2023

Wed 4
Featured Featured Oct 4 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 9
Wellness Hour
Featured Featured Oct 9 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 10
Featured Featured Oct 10 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, October 10th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 10
Featured Featured Oct 10 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 12
Featured Featured Oct 12 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 17
Early-Onset Parents Roundtable
Featured Featured Oct 17 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 26
Featured Featured Oct 26 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, October 26th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 26
Featured Featured Oct 26 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 28
Featured Featured Oct 28 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 31
Featured Featured Oct 31 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

November 2023

Wed 1
Featured Featured Nov 1 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Thu 9
Featured Featured Nov 9 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Mon 13
Wellness Hour
Featured Featured Nov 13 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 14
Featured Featured Nov 14 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, November 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 14
Featured Featured Nov 14 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 21
Early-Onset Parents Roundtable
Featured Featured Nov 21 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 23
Featured Featured Nov 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, November 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 23
Featured Featured Nov 23 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

Sat 25
Featured Featured Nov 25 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 28
Featured Featured Nov 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

December 2023

Wed 6
Featured Featured Dec 6 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mon 11
Wellness Hour
Featured Featured Dec 11 @ 5:00 pm - 6:00 pm

Wellness Hour

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »

Tue 12
Featured Featured Dec 12 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, December 12th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Tue 12
Featured Featured Dec 12 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 14
Featured Featured Dec 14 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

Tue 19
Early-Onset Parents Roundtable
Featured Featured Dec 19 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Sat 23
Featured Featured Dec 23 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 26
Featured Featured Dec 26 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
Featured Featured Dec 28 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, December 28th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 28
Featured Featured Dec 28 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who... Read More »

January 2024

Tue 9
Featured Featured Jan 9, 2024 @ 6:00 pm - 7:00 pm Event Series Young Professionals

Young Professionals

Zoom Virtual Meeting

7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 16
Early-Onset Parents Roundtable
Featured Featured Jan 16, 2024 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

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