So you don’t have to journey by yourself by Anna Gilmore, FSHD Society At the FSHD Society, the families we serve always come first. With that in mind, we are […]
The FSHD Navigator
FSHD is one of the most prevalent neuromuscular disorders
Many researchers have long suspected that the number of individuals with FSHD is significantly greater than has been reported. A new study from the Netherlands bears out this suspicion and […]
Celebrate World FSHD Day on June 20
On June 20, we will celebrate the inaugural World FSHD Day to raise awareness for Facioscapulohumeral muscular dystrophy. Participants from across the globe, including individuals with FSHD, their families and […]
FSHD Canada awards $20K for FSH Society research grant
[…] Society is pleased to announce that it has received a grant of $20,000 from the FSHD Canada Foundation in support of an exciting, treatment-focused project, “Developing LNA-based therapy for facioscapulohumeral […]
FSHD 360
[…] about the latest research, managing your condition, and empowering our community! Every person diagnosed with FSHD embarks on their own unique journey, yet none of us walk alone. FSHD 360 […]