[…] stress, illness, and disability. This is being offered as a pre-conference activity of the 2018 FSHD Connect. If you wish to attend, RSVP to Robyn O’Leary at robyn.oleary@fshdsociety.org. Thank you! […]
FSHD Connect pre-conference workshop: A Mindful Way through FSHD
Get involved with research! FSHD-affected and FSHD-unaffected volunteers needed
Get involved with research! FSHD-affected and FSHD-unaffected volunteers needed for research study using (MRI) and magnetic resonance spectroscopy (MRS) imaging in skeletal muscle at KKI, Baltimore, Maryland. Learn more about […]
World FSHD Day
Celebrate World FSHD Day on June 20th Every June 20th, people around the world join in activities to raise awareness for Facioscapulohumeral muscular dystrophy (FSHD) through World FSHD Day. There […]
Research We Have Funded
Since 1998, the FSHD Society has funded groundbreaking research on facioscapulohumeral muscular dystrophy. The Society’s grants have contributed to the discovery of the genetic basis of FSHD, shed light on […]
FSHD Connect Conference
Over six days in June, in Orlando, Florida, the FSHD Society brought together world leaders in FSHD research, patient care, advocacy, education, and support. FSHD Connect patient conference, a cornerstone […]