Our Roadmap for a New Era
Your support has enabled the FSHD Society to play a key role in the advancement of FSHD therapies and provide support to our community worldwide. We're poised to reach more milestones in 2024. Watch the videos below to hear from CEO Mark Stone about our journey and plan to ensure that effective FSHD therapies reach our families.
A Proven Track Record
The FSHD Society has been tightly focused on understanding FSHD and speeding up the development of treatments. Now that we are in the 12-month home stretch for the first-ever Phase 3 trial of a drug designed to slow the disease process, it’s time to look up and scan the horizon. We all desperately want better medicines, but our ultimate goal is better lives for everyone with FSHD... Read more