Fulcrum Therapeutics has announced successful completion of patient enrollment in REACH Phase 3 trial The FSHD Society is thrilled to announce a significant milestone in the battle against FSHD. Fulcrum… Read More »
The FSHD Society Celebrates Fulcrum’s Milestone in the Fight Against FSHD
Challenging the narrative: new film stars actor with FSHD
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and… Read More »
Advocacy and industry partners launch new global coalition to speed delivery of new therapies for FSHD
Project Mercury unites patients, industry, research and clinical communities in groundbreaking initiative from Fulcrum Therapeutics Today on World FSHD Day, the FSHD Society and Fulcrum Therapeutics announce the launch of… Read More »
Unleashing the Power of Collaboration: Achieving More for FSHD Together
by Ken Kahtava, FSHD Society This blog post was originally published here on the Project Mercury website. On 11 May in Leiden, NL, the Project Mercury global task force members met for… Read More »
An Unforgettable Experience at Leicester City’s Disability Matters Matchday
The city’s famed football club engages, inspires, and empowers this FSHD family Last month, father and daughter Michael and Alexa Penwell had an incredible experience in Leicester City, England. They… Read More »