What is FSHD? Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. Typically beginning in early teenage years with the loss of […]
What is FSHD
FSHD University
Go to the video playlist FSHD University is your center for education about the art and science of living with FSH muscular dystrophy. We focus on three “departments” – Physical […]
Finding FSHD: the story of DUX4 in a zebrafish
[…] models that represent the disease in a controlled laboratory setting. However, in the case of FSHD, creating an animal model which accurately represents the human disease has proven difficult. One […]
FSHD Canada Foundation awards $2.8 million to CTRN
by June Kinoshita, FSHD Society The FSHD Canada Foundation, a close partner and fellow traveler of the FSHD Society since its founders Neil Camarta and Craig Kelley first met in […]
An update on early-onset FSHD
[…] our understanding by Amanda Hill, Highlands Ranch, Colorado As many as 20 percent of patients with FSHD have an “infantile” or “early-onset” form, which is generally understood to be more severe […]