Your health and well-being are our highest priority. Many of you already felt isolated by FSHD, and with COVID-19 it became even harder to get out, or for others to […]
FSHD Society Sequester Camp
Early-onset FSHD
When your child is diagnosed with FSHD Early-onset FSHD (also called infantile FSHD) is a less prevalent form of FSHD characterized by facial weakness appearing before the age of 5 […]
FSHD Society Radio
[…] to hear Tim cover? Let us know what you have in mind! Email Tim at FSHDRadio@fshdsociety.org With Your Host, Tim Hollenback Before his diagnosis in 2016, Tim had never […]
Genetic testing for FSHD—a new frontier
There are exciting new developments in FSHD genetic testing. A genetic test for FSHD is now being offered by PerkinElmer Genomics, a global company known for scientific and medical testing […]
FSHD Contact Registry
Your data will power breakthroughs for FSHD! When FSH Muscular Dystrophy impacts a family, they have one goal: to live their best life, which includes finding treatments and a cure. […]