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Search for: "fshd"

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Anna Gilmore stays home for chapter directors.

FSHD Society Sequester Camp

Your health and well-being are our highest priority. Many of you already felt isolated by FSHD, and with COVID-19 it became even harder to get out, or for others to […]

Early-onset FSHD

When your child is diagnosed with FSHD Early-onset FSHD (also called infantile FSHD) is a less prevalent form of FSHD characterized by facial weakness appearing before the age of 5 […]

FSHD Society Radio on deezer

FSHD Society Radio

[…] to hear Tim cover? Let us know what you have in mind! Email Tim at FSHDRadio@fshdsociety.org With Your Host, Tim Hollenback   Before his diagnosis in 2016, Tim had never […]

DNA testing for FSHD

Genetic testing for FSHD—a new frontier

December 14, 2021 Pinned Post 3 Comments

There are exciting new developments in FSHD genetic testing. A genetic test for FSHD is now being offered by PerkinElmer Genomics, a global company known for scientific and medical testing […]

Filed Under: FSHD Research, Health and Medicine, Living with FSHD

Patients Accelerating Clinical Trials or PACT

FSHD Contact Registry

Your data will power breakthroughs for FSHD! When FSH Muscular Dystrophy impacts a family, they have one goal: to live their best life, which includes finding treatments and a cure. […]

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